Al is doing pretty good on being home five out of seven days now. I think he likes not being tossed around on the bus and isn’t quite as tired. Although if he had his way he would go to Day Program five days per week.
His crying has leveled off quite a bit. The doctor took him off one of the medications and I think that was the culprit that made his tears so much worse. His appetite has been big lately. I guess he makes up for the days he doesn’t eat.
He got a Christmas card from a lady who also is in the M.S.A group. He really likes it and holds it quite a bit as it sparkles when you turn it in different directions. If anyone wants to send him a Christmas card, please email me at firstname.lastname@example.org for his address.
Although we have had our tree up for sometime Al has begun his ritual of now not being able to talk about Christmas. He doesn’t speak about Christmas that he and I share. His memories go back to when he lived at home and Mom and Dad were still here.
I heard him telling someone that he hated the holidays and yet he likes the Christmas tree lit up and the white lights in his bedroom. So I guess the point is he misses our parents so much and he longs for Christmas to be the way it used to. Deep down inside, so do I. I just don’t talk about it.
He has been complaining of burning feet the past two days. I have researched it and find that many M.S.A. patients have this issue. It is sort of like Neuropathy I think, caused from the disease. I give him pain medications but like his other symptoms the medication takes the edge off but doesn’t fix it enough.
Al and I had an interview with a young lady today who wants to work the weekends. Al started talking to her almost immediately. Filling her in on his coca cola and cars. She jumped right in and helped turn him and was dabbing his slobber.
I have to admit I was really impressed. She is strong too. She had no problem rolling him over. She said she wanted the job so I am hoping she will or can start this weekend. She will mostly be with him but I spoke to her about dusting his room and feeding him. Cleaning up the dishes. I think it is fair, don’t you?
I told her there would be no medications to give as I do that. I explained that her major job would be making him feel special, she agreed.