The Lesson In Life


Parkinson's disease

Parkinson’s disease (Photo credit: Wikipedia)

Once again I awoke to sunny skies. Summer is near and our spring is beautiful.God is all around us, just look at the birds, and the new leaves on the trees, the flowers popping up. Beautiful. Today, Al awoke with a smile on his face. Yeah! It was going to be a good morning. I had to take him to the doctor today, for his lab tests  that he had done last week. It was nearing time to go and I asked him if he was going to change his clothes. He shook his head no. I told him we must always change our clothes each morning. I think this is the dementia, because  he doesn’t seem to understand the clothes changing any longer. He would wear the same clothes daily if I didn’t say anything. We went to the doctor, and the lab tests all came back good. The sugars, the doctor said were on the high side. I was surprised to hear this. Me, being a diabetic, I know the good numbers they should be at and they perfectly, should not be over 100. I asked the doctor, what were the numbers. He said 101. I just smiled at him and said nothing. Everyone goes on a scale in numbers. I am surely not going to worry about one point over the normal. I wanted to laugh out loud at the doctor, and the world,and anyone else that would listen to my howls. I get so sick and tired of each of us being put under an  umbrella scale. We are each individuals, our bodies working for just us, not for the whole world. My sugars run on the high side according to the scales. If mine are under 150 at bed time, I can almost guarantee, they will go so low through the night, that I have actually crawled to the kitchen to find food to bring them back up. I do not like this happening to me. It is scary, I have no one to call to help me, so my sugars run around 150 or a bit higher, if I cheat. Each time I go to the doctor, I get scolded about my sugars, I listen, but I know my body better than anyone else, so I do what I think is best. At the end of the appointment for Al, I asked the doctor a few important questions about Parkinson’s, and he said to me, he is not a Parkinson’s doctor. He knows nothing really about it. I was shocked, to say the least. He has been subscribing medications for something he doesn’t know about? Wow. I discussed having him sign a paper for me to send to Hospice, so I could get some help for me. He told me that Hospice liked it if they had a patient that had six months to live and he didn’t know about Al’s time-table, so the answer was no. I asked him for suggestions for me to get out, and he said call home health care. I did have two caregivers, one quit, and one only gives showers, so I am back to not getting out by myself. I wonder what other people do in these circumstances. I had checked into home health a couple of months ago, and the charges they would charge us were almost twenty dollars an hour. We can not afford this on a regular basis. I guess God is going to have to take care of this for me. I need a mate, or  husband, or someone who can be here for me and Al. So, today, I got a lesson in life. Doctors can and will prescribe medications without knowing the disease, and it is hard to get part-time help, because all want full-time hours. We went to his favorite place for lunch after the doctors, and he was still in a good mood, calling people by short names, like Bec, instead of Becky. Waving to everyone. When he had his visit from his mom, it has had a long-term effect on him. That was Sunday and today Tuesday he is still on a high roll. I am happy for him. When we got home, I stripped down a child’s rocker for my son, and tomorrow, I will start the sanding process and stain it for them. I used to own my own antique business, so I love working with woods. Al is napping, and all is well for this day. Thank you Lord

34 thoughts on “The Lesson In Life

  1. Sometimes…no maybe a lot of times the healthcare is confusing..I’m a Canadian but there are commonalities..it seems doctors like crises..they don’t have to wonder what’s the right thing to do..like offer respite to somone who MAY have a brother and takes so much of their time and energy that they need help even though the TIMETABLE cannot be established…He could it seems make it happen. Everything depends on how the doctor makes a referral. I had a really difficult time getting in to have a certain test done to see if the problem with my hands is MS or Carpal Tunnel..It was going to be a year for the doctor that I go to…finally ended up with another doctor in July which was only 4 months after I said I could not wait a year….A doctor’s receptionist once told me when I was waiting for my knee replacements that it depends on how urgent they feel the appointment is …so I guess you have to ‘play it up’ in order to be heard! ….long reply Sorry…Diane

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    • never worry about long replies. i love reading comments. i learn from many of them. i totally understand what you are saying. they just don’t seem to feel for the caregiver. if the tests are normal, then there is no need for anything else, they are so wrong

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  2. I love that you stayed silent. First, you didn’t upset Al, which would have in turn upset you. Maybe you should think about a Life Alert. To think of you that weak sort of scares me, but I also think you’ve been doing this awhile and can take care of yourself. Just want you to always be healthy. (((HUGS))) Sandy

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      • If I lived alone or or was a caretaker to someone like Al, I do it. When I first injured my back, I had so much trouble getting in and out of the bath. One morning, Kelly was coming home to take me to a doctor’s appointment. He found me shivering in the tub, having been there for the better part of two hours. After letting out the water, I found I could not lift myself up. I knocked the towel over so I was wet, cold, and naked

        After the doctor’s appointment, we went and got me a cell phone. Up to that point, Kelly had one but not me. I had to promise to carry that thing everywhere…and still do.

        I’d suggest that but if you became unable to push the buttons to call 911, it wouldn’t be much help. My grandmother had a Life Alert because it was just the push of one button.

        A woman here in Fayetteville used it when intruders came into her house early one morning after her son had left for work. When the voice from the Life Alert station came over the little voice box, the intruders ran, but were caught later on with the woman’s purse.

        Just want to you be around for a long while. Sandy

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      • oh…LBTK is me, Sandy. I always try to include my name. LBTK stand for Loved By The King. It’s from a Chris Tomlin song: I know I am loved by the King and it makes my heart want to sing. Sandy

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      • It’s okay. One of my Sunday school students is a branding specialist/creative director. She suggested LBTK. People ask me about it all the time. I guess that’s the purpose of branding…getting people interested enough to ask. Sandy

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  3. Seem to be having some good days…I’m all for that…aren’t you?…My sister is having the same run around about healthcare for her husband…and like you…is doing it herself…SO many agencys…but, no real help…So frustrating!…~mkg

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  4. Praying for you, Angel Terry, trusting Him to bring you and Al the help you need. The doctors just don’t understand about this . ..don’t think of it or what it must be like for you. God bless you and tenderly care for you today. I love that you do all the staining and wood working. . .what an amazing lady you are!

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  5. Terry, have you asked the doctor why he didn’t refer you to a specialist for Parkinsons since he knows nothing about it? I had a primary care physician who knew nothing about what was going on with me and kept prescribing things that didn’t help. He would tell me that my pain was in my head, and most likely just my brain responding to my high blood pressure. That the ringing and whooshing in my ears and the migraines were because of high blood pressure. Funny thing is I only had high blood pressure when I went to see him, not my other doctors. He even kept prescribing meds that I had severe allergies to. I would come home more confused and angry from these appointments than I went in with. Finally he ordered some blood test, because my sister-in-law who is a nurse suggested I be tested for Epstein-Barre Syndrome because I kept getting sick. During these tests, the young lab tech and I were talking. After listening to me she stopped and said, you need to go to a specialist and be tested for fibromyalgia. She had it and recognized the symptoms I was having. So I marched back into his office and demanded that he send me to a specialist that could test me for fibro. He was upset that I doubted him, but I didn’t care…It is my body and I knew he was wrong. Sure enough I went to my rheumotologist and she not only found I had severe osteo arthritis from injuries in my back (5 major ones), but had all positives on the18 spots that they tests for fibro, and she found the injuries to my disks in my neck. After surgery for the disks, the whooshing and ringing in my ears stopped and the constant severe migraines stopped. Now I only have them once in a while. She listens to me and is an expert in the illnesses I deal with. The primary doctor had so many complaints about his treatment of patients that the hospital he worked through let him go, and I was assigned to a new primary care physician, as were all his patients. Now I usually see a nurse practitioner who immediately refers me for things she doesn’t know about, and she takes the time to know what I’m allergic to before prescribing. She is proactive, not arrogant, and truly cares, as does my rheumotologist. I think I’d get a referral to a doctor who specializes in Parkinsons and can really see where Al is. Maybe then you will get the help you need in caring for him. Who knows the specialist might be single too…lol. Parkinsons is too serious to leave it to someone who doesn’t know diddly-squat about it.

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    • i used to own my own antique store. i bought and resold, and refinished furniture for customers. i also worked in auction houses that sold antiques. i loved it and wish i could go back to it, but not at this time. costume jewelry still remains a passion for me. i collect it, and i love most antiques except glass wares and silver

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  6. Terry, an other pleasant and drama less day for you – so happy for you and you have time for doing something you enjoy. A personal project. Love to take part of the smiley days !!!!!

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  7. I’m so thankful you’ve had good days with Al. Doctors can be very frustrating… I do know from experience there are some great doctors out there and then there are some horrible ones as well. I can see the Lord is working in your life developing your patience and faith as you consistently seek to do what is best for Al. Lord bless. I’m praying.

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      • It’s your details that draw us in. Really, it makes us understand your perspective, like the camera behind the lens, soaking it all in. We’re here for you! Hugzz!!!

        Pink.

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