Our Celebration!


Saturday I took Al to see the fireworks here in town. I try to find the little things in life to occupy Al’s mind, but it is seemingly getting harder to know whether he is enjoying our activities or not. His body is sometimes bent so forward, that it is hard to see his face.  To me, I notice, that this Parkinson’s takes a hold of the body and twist the breath out of the lungs, and forces the body to double over, trying to regain what has been taken away.

We sat on the bleachers, with Al sitting on the third one from the bottom. After watching the fireworks, it was time to leave, and Al just sat there. I could see the fight coming from within him as he tried getting his legs to move. He top half of his body was moving, trying to turn to the side, to step off of the bleachers, but nothing on the bottom half was inching.

He started crying and his face was getting red from being humiliated, and working so hard. I walked over to him and helped him move, but at first, even my help didn’t do anything for him.

I was guilty at first, when Al started having these freezing moments, to just step in,  like I did when I was working in the nursing homes. I would take over the physical actions of the other person, and make the body move for them, but with Al, I have seen the frustrations of not being able to do things for himself, so I smack my legs with my brain thoughts, and stay back, giving him a chance to do things for himself.

I took a hold of his legs and turned them towards the end of the bleacher, and tried to pick him up to lift him down the two feet to the ground, but of course, I was too weak. We talked and with talk, brought more calmness, and with calmness, brought  concentration, and finally, we were able to get off of the bleachers. I paid no attention to the fact, that Al stood there for a few moments, trying to get the legs to stand steady enough to move on their own, because I was still screaming VICTORY inside,to the fact I had gotten him off of the bleachers!to the fact I had gotten him off of the bleachers! I am just going to assume that he enjoyed the fireworks.

Here I have posted some photo shots of the fireworks we both saw. They are not the best, because they are night-time photos, but I hope you will still enjoy them.

 

33 thoughts on “Our Celebration!

  1. My phone’s camera certainly doesn’t catch any night images this clearly. One day I’m going to buy myself a real digital camera and immerse myself in the moments of life. Thank you for sharing the fireworks with us!

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      • Makes you wonder what’s the point of spending all that money on actual cameras when your phone does it all. 😀 Seriously though, one day, I want one of those really efficient cameras that can capture the perfect sunset. I saw one on Sabbath on our way back from the Camp meeting, such a beautiful bloodred over the water. I almost cried because I couldn’t get the shot. 😦

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      • i just love taking photos, and am pretty well pleased with my new camera, but it still doesn’t capture what i want. i want one that is too much money, with the separate lens that you attach for wide angles and very good close ups, but i need to be satisfied with what i have, because i am lucky enough to have one, period!!!

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      • I know what you mean. Those beautiful professional cameras with the interchangeable lens call to you don’t they? 😉 But we’re contented souls 😀

        P.S. Have you seen the bunjee jumping ad with the camera that has an amazing zoom?! :-O

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  2. My thoughts are that when Al get ‘humiliated’ that he is feeling something he should not be feeling as I would imagine that no one around him ever thinks badly of him, because they realize he has a problem….but maybe that’s something that he can’t get over feeling …just some thoughts….Diane

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    • i think you are right Diane. Al gets very upset if he feels he is looking or acting differently than others…………he can not get over it, i believe, because the Parkinson’s causes so much depression within the illness.

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  3. Terry, The photos are great! Did Al have to look up to see them, because it might be that the action of doing so is pinching nerves on his spine that are sending message to his legs that keeps them from moving? Also, the bleachers themselves could have made it worse. I can’t sit on bleachers or unpadded chairs for the same reason. After sitting on them so long I can’t get up. This weekend we went to our nieces graduation. We ended up staying at my husband’s sister’s house to save money on a hotel and stay a day longer for our niece. I sat in a lot of these chairs all weekend, and often had to be helped up from them. I helped our other niece sew a blanket for her sister as a graduation gift, and had to sit in them, and get on the floor to help her layout and pin it. Don could see how hard it was on me, but that I was committed to making sure my niece didn’t quit in frustration, because she is just learning to sew and this was her first big project on her own. We stayed up until 4:30 in the morning in those hard chairs, and it took its toll on the nerves in my back and legs. Maybe the benches made it worse for Al. A suggestion if he had to look up at something is to give him a mirror for his lap so he can look down into the mirror which will reflect what he is looking up at. Another is one of those telescopes that you look down into the lens and see what it is aimed at. Just some ideas. A hand mirror would allow him to move it enough to get the view he wants.

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    • it doesn’t sound like you had the most comfortable time with the graduation, but i am glad that you were there to share with the family. Al is in the last stages of Parkinson’s and in this stage, there is freezing. Freezing is when the brain does not connect anymore with telling the body to move, and the worse the disease progresses, so will Al not be able to move. In time, he won’t even be able to walk, stand, use the bathroom, he will b wheelchair bound or bed bound. it is a terrible disease, and i have to sit and watch it take his life. the mirror is a wonderful idea, and i will certainly carry one with us for any upward viewing. thank you so much for this idea!!!

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      • Well, keep holding on to the promise that the Lord gives us of that new body in Heaven. One day Al will be free of the earthly shackles of this illness, and will have a new body, as we all will when we go to be with Jesus. God is faithful and will keep this promise to us if we believe in Him. Each time we face this struggle as Al is, or as a caregiver see our loved ones struggle through the chains that illness puts on us, we need to pray for healing, but be willing to hold on to the Lord if he choses to wait for heaven for that healing for us. By the way it actually went well this weekend. My sister-in-law just found out she is facing some of the same illnesses I am dealing with and she was far more compassionate toward me than she has ever been. We had a wonderful talk on Sunday morning about the past and I let her know I have forgiven her. It was truly a great visit.

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      • o i am so glad that you were able to have that time with to share with her. it makes it so much easier to speak to someone who knows what you are going through doesn’t it. Al and i talk often about his new body. i think from what he says that he is tired and he wants this new body, but u r right, and Al knows it too, it is in god’s timing, not ours

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  4. Love the pictures.
    Terry, you definitely have the patience of Job and more empathy in your little finger than most of us have in our entire bodies. You are truly an excellent role model for the rest of us!
    God bless you.
    Barb

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    • oh Barb, thank you for this kind comment about me. i do lose my patience though, mainly behind my bedroom door. i don’t like to upset Al if possible, it only makes his tremors worse, and he feels more guilty as if he is responsible for his illness.

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      • The local High School has a fireworks show on the 4th of July. My town has fireworks in August during the annual Fest. So yes, firework displays are part of my summer, too. Enjoy the day!:)

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      • so you have lots to look forward to in august! great! i can’t believe i am seeing back to school specials on the TV already, summer always flies by so fast

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  5. I thought your photos turned out great! And I loved that you took Al to the fireworks, that you keep trying, always trying. You are a blessing and an angel, Terry! love and prayers!

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    • i always hope that i can still place that occasional smile on his face, thank you Debbie, you are so sweet, with your wonderful replies to my stories. i can tell that you care about us through your words

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  6. I am so happy for your victory, Terry. Al should see me when I try to get up after sitting too long. When I get out of the car after a long drive I often say that I feel like I have been horseback riding. It takes a while to get my legs working properly and I don’t have anything like Parkinson’s. My aunt had it when I was young. She was also blind. I remember thinking how awful it must have been for her when my uncle took a lengthy trip to England every year and left her in a nursing home. I think I was about 16 when she died.

    Your photos are great. I was hoping to see some fireworks this year and get some pictures, but it didn’t happen. Someone in the neighborhood had them on Sunday night, but we couldn’t see them from here. They went on for well over an hour. Must have cost them a mint! But I’m glad you and Al got to see them.

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    • i really did have a good time. Al has never spoken of it. I know what you mean by the feel like you were riding horseback. i get the same way. my good old bones just don’t work like they used to, and i hate to admit i am getting older…..lol thank you for the compliment on the photos. they could have turned out better, but night photos are hard for me to capture. thanks for your heart felt reply my friend

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