Well, life sucks. Isn’t this a hoot? I write about my questions I am going through, and Al wakes up in pain. He was in a lot of pain last evening, all through the night, and it continued
into this morning.
I knew that he suffered from being placed on the scooter for too long in order for the caregiver to get her hours, but I didn’t realize the after effects on the knees. He could still barely walk this morning, and is still in tears.
After his shower this morning, I force myself to tell the story of Al’s pain due to the scooter, and the caregiver tells me that she has an interview with a business and wants to take it! She is going to continue the showers until her time is over here and her new job starts.
I sat here and fretted about her not getting her hours from me, and she already had it planned that she wasn’t staying. Life sucks, isn’t this just the hoots? Now what direction is everything going to head???
Who I am 
just when we think life is all figured out it goes and throws us a curve ball! it occurred to me that she was not aware how the time would effect him and was just trying to get him away from the t.v.
of course this is a difficult process of trying to adjust what you and al really need. i sincerely hope medicare will be able to assist and provide some relief to you both.
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Al and I definitely need something, but what…………i can’t believe she was here two days and already planned to leave. i am about to throw the towel in and just take care of his showers myself. here i fretted trying to figure out how to shorten the hours,and she was planning on leaving anyways. maybe medicare will b able to help. waiting on phone calls
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Still one step at a time, Terri, one breath at a time…xoxoM
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this illness leaves no strategies for routine of anything…………………back to square one, with the hope of maybe medicare helping, but not sure of anything on that yet
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Yes, you’re right: “no strategies for routine.” I wait, and pray, with you! xoxoM
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thank u
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Terry, please seriously investigate a nursing home before you crack like I did.
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o Julie, some times I think i have already cracked. i am waiting on calls about the medicare ideas, and then i will have to decide something for sure after that. i hate how this disease takes life away, and i know you know what i am talking about
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I know – i really know. Gotta go to bed but will check you in the morning sweet girl
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sleep tight
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aww Terry is this the one you just hired or the one that has just been giving Al his showers?
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the one i just hired……….why in the world do they apply here when they want to go somewhere else………………..even when i knew the hours needed to be cut, she beat me to it, just like all the others, always quitting
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have you thought of interviewing more than a couple and letting them know that you need at least a year commitment, there might be some days you need them longer than others…but i still think it’s a good idea for you to take the time even if Al is only watching tv. for you.
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i got a call where medicare may help. am hoping, and have tried that idea before, they don’t want a few hours, they want enough for me to support them, which i can’t but don’t blame them
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You will eventually find a caregiver who is just the perfect fit. Now you you know he cannot handle being on the scooter that long. Hugs to Al and you. Sandy
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i was so positive that the reasons Al acted so gloomy and cried so much was being with me. the sister, the boss in his eyes, but this has opened my eyes, to the fact it is the Parkinsons and not me, which i needed to know this. i knew or wondered if he would b alright on the scooter that long, and you are right, now i know
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And the fact that you recognize that it’s not YOU but the DISEASE should make you feel better about you. I know it will not alleviate the stress about the fact that it’s stripping Al of who he once was, but you must embrace that he’s not upset or sad with you. Keep me informed. Sandy
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yes, it does make me feel better, that i now know it isn’t me, but the disease. i will keep u informed
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Oh Terry…I hardly know what to say. You’re exhausting all avenues to get the help that you need …God doesn’t close doors without opening a window..I don’t mean that as a ‘trite’ comment because I really feel that your options are narrowing somewhat and after trying them all you may be left with only one….I pray for you and all that you have to decide and handle….Diane
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i understand what you are saying Diane, and I know that is the last resort. Medicare may be able to help after all, after i received a call from a home health care agency today, but if not, i m afraid i will have to use that last resort
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I came to read this after the other post . ..and I’m just so sorry. One thing, Terry, is that you have seen that you ARE taking good care of Al. Someone else coming in didn’t understand that he just needed to watch tv sometimes . . not go on a morning long excursion. love you and am praying with you.
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thank u Debbie for understanding, because these caregivers don’t, they want money!!!
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Can’t believe this .. what is the problem with people – why take a job on if you’re not going to keep it. Terry, I don’t know what to say. Isn’t never going to come to an end for you and Al, where you find somebody serious and genuine. – feel so for you.
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i know, it just pisses me off!!!!! am hoping medicare will help, got a call today that maybe a home health agency can help after all
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I hold everything I can hold for you – they should help you !!!!! When you meet with them .. be a nerve rack .. cry and do a bit drama – don’t be strong and calm.
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i love your way of thinking. i better be careful or they will put me away!!! lol
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Lifting you up in prayer, my friend!
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thank u Brian, please pray that medicare finds a way to help home health care to help us please
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Hard to be philosophical at a time like this, Terry…
Scream and shout then suck it up and get on with it – is about the best you can do…
You know though; we always get through – even though we scar on the way..! xoxoxo
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thank you Carolyn. I do have a chance with a home health care agency, whom called today, so just waiting for the answers……….
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I am so sorry it did not work out, but please keep trying, Terry, you need the help for the both of you. God bless you, Terry.
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I am hoping something works out with a home health care agency that called today, it just takes time to get all paper work in order and approved, so keep your fingers crossed!!
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You’ve probably already thought of this, but can you transfer any assets Al has to your name so that he can qualify for help from Medicaid? We had to do that with family member.
I’m so sorry about the caregiver quitting. It happens a lot in that industry (unfortunately).
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i wrote u an email
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Just letting you know…I feel your aggravation and pain in having to deal with this situation…I feel for Al…with the pain…
but, I believe the caretaker probably thought he could do it…and was helping you by getting him out…It does take time
to get to know the person you are coming in to care for…and it is alright for you to discuss his care…All of you are in
a learning phase …Sorry more time couldn’t have been given…it might have been a good fit…~mkg
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i didn’t let her go, she quit as she took another job………..she should have never applied when she knew she was wanting full time work
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Isa 41:10 (KJV)
10) Fear thou not; for I [am] with thee: be not dismayed; for I [am] thy God: I will strengthen thee; yea, I will help thee; yea, I will uphold thee with the right hand of my righteousness.
Thats all I know to say. May He continue to bless and strengthen you.
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i have done a lot of praying and am calmer as i placed my fears in God, thank u so much Rob for your support in prayer
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I confess to not understanding health care in the USA. (the way it works). I thought if you paid into an insurance scheme you could then get the required help, but I’m guessing I’m being v naive?
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it is very difficult to get medicare to pay, there are many strict rules, but i am thankful they are going to help with this, working with the government is always a challenge
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May God open up the path of ease for you, and the answers to what is best. Ameen. Hugssssss
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i think he did!
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