I am usually so strong, so I can hardly believe I feel so weak and tired. It is only 7:30pm, and I have hours to go before I can go to bed, since Al stays awake so long from his tremors. I sometimes think that it is also partly a habit by now, that his eyes do not want to close until 3:30am. So I will be safe and say it is a mixture of the two.
It was a busy, busy day. No, I didn’t have to clean in the house. I did find the minutes to do a load of Al’s laundry since we changed beds out this morning, and I have just now folded them.
Thanks to so many prayers, my head no longer hurts, and my shoulders do not feel too much pain, but my eyes are so droopy. Is this due to stress or the day of visitors, or maybe just both.
I want to apologize for not responding to too many blog comments or read too many today. Every time I sit down to the PC, my eyes get weary and fuzzy from lack of sleep.
I read two blogs that spoke of me and Al, so I reblogged them so you could read them also. The one was the visit from the blogger friend, who came here to meet Al and me yesterday, and the other is a very nice man who talked about me being so strong.
Guilt sort of came over me after reading his remarks, as today, I don’t feel the strength at all. I feel like I have worked in the fields of a slave owner. I am going to lay down on the couch out here where Al is also lying on the opposite end of the wrap-a-round, and I hope Al forgives me, because I know I will be out. I should not do that, but I am hoping, that since I am a light sleeper, I will hear him moving, or trying to get up.
Everyone showed up today, the nurse, occupational therapist, physical therapist, and the bed company, along with a nice surprise of my granddaughter and daughter-in-law. I tried very hard to turn my head when I had to yawn. LOL
I had made a batch of potato soup today during the breaks of visitors. I had made a white sauce and had cubed potatoes, bacon, fresh sliced carrots and many spices. It was waiting for us for supper. Al said he wasn’t very hungry, and I begged him to eat a little, which he finally did.
I hate to see him lose weight, as he has already lost 53 pounds, so I told him a big thank-you for eating a small bowl of it. I feel so bad for him. He has asked many questions today, which I expected. He was told to put his canes into retirement, and another walker was sent out, so now he has two. One for bare floors and one for carpets. This is really confusing to him, but I just kept saying all day, everyone cares about you so much, we all just want to make sure we do our best to not let you fall. I think I must have said it at least 20 times.
When supper was over, I cleaned up the mess, and placed the left-overs in the refrigerator, and pushed the magic button on the dish washer. Thank-you Ms dishwasher, for not making me stand here tonight.
The tears are fifty per cent gone now and the house is quiet except for the dishwasher and Jeopardy, so I am getting off of here. I am so sorry to all, but I can not stay awake any longer.
i had to reblog this because today was awful and i needed the lift and because of this and Marilyn’s I have been lifted
I am a terrible fiddler. All my life I’ve never been satisfied with anything the way it is and always have to change things around. As a teacher my classrooms have never remained the same from one month to the next, my teaching style changes regularly and now my writing styles and routines for my blog are changing too!
I say this by way of an apology to readers because I am trying out yet another odd idea (and one that has just come to me, as these things do, so rather than think it over, I’m just going to do it! Truly, ‘thinking out loud’ again!). Roughly once a week, on top of my usual post and the short miniposts for subscribers only, I will reblog the post I read from amongst the hundreds I get through each week and add my thoughts to encourage you to read…
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this made me feel so moving that i cried. i love my friends………….
Where to begin???
I got it into my mind to meet (visit) a blogging friend …
No, I had never met her personally… She has a brother, Al… who has Parkinson’s disease … She has her own blog… and has made hundreds of blogging friends … just by describing her daily life with this debilitating disease …
When I first read her blog… I guess I was drawn to it due to working with Special NeedsChildrenfor 30+ years and also by having a son diagnosed with Bi-polarDisorder …
I could sympathize! …
Of course I’m not the only one as I said… that gives her words of encouragement… feels her hurt… her pain… her tears … her fears… as she watches her brother’s body deteriorate …
I have learned so much from her blog… as to the real meaning of…
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Oh my, all of this help coming so often to help Al be able to walk longer and all Al is doing is showing his fangs. He has drawn his fist, gritted his teeth, and cussed and gotten mad. The first therapist has been here and now gone, and Al has discovered his mattress and box springs is going to be leaning up against the wall, forcing some of his items to be removed from the wall for a period of time, as there is no other place to place his bedding.
Please pray for us, as I am a nervous wreck, almost in tears. We have the nurse and another therapist to go through, plus the set up of the hospital bed and tearing down the old bed.