I want to take a moment of your time and say a huge thank-you to all who participated in sending Al cards, some even sent me cards, which was a nice surprise. Al still looks at my hands to see if I have any mail for him when I go to see him at the nursing home, and now, I have two more to take to him tomorrow.
I went to see Al today, and he was in therapy doing leg exercises. The therapist was telling Al how good he was doing and making big process. I had to admit, hearing those words made me feel good also, and for a quick moment, I wished that this meant he was going to be able to throw that walker a way one day, but Al did more than think it, he asked it.
He told the therapist that since he was doing so good, that his Parkinson’s was finally going to leave and he gave a big old smile, and then she busted that smile and turned it into a frown and tears.
She said no, you won’t ever get to the place that you won’t need the walker, we can’t fix the PD, but we just want to try to keep your legs strong for a bit longer. He sure did not understand and told her so by saying, but you said I am doing better……..I backed out of the therapy room a moment while I let a couple of tears flow for his sadness at hearing this,when he truly did hear that he was getting better.
It reminded me once again, that doctors and nurses, therapist sugar coat, telling me Al is doing great, but instead they forgot to mention the PD has now penetrated his heart muscle.
I want to say thank-you to:
thank you all!!!!
- By Trial and Error (awarenessspa.wordpress.com)
- Some Kinda Breakthrough (lookingforthemissingme.wordpress.com)
- New Parkinson’s Exercise DVD Focuses On Functional Fitness (prweb.com)
You have had a rollercoaster of a time Terry. Take care and keep strong. I’ll be thinking of you.
hopefully this roller coaster will slow way down
Fingers crossed. Take care.
Terry, take the good news … and cherish them – I’m sure he are doing progress and enjoy that.
Take on the heart problem when you have too – he is not suffering badly just now. So enjoy his progress with him – and don’t worry about his weak issues. Let him believe he is doing better, because he is happy then.
oh you are so right! the wish entered my mind, but he asked and they told, i wish they would not have told him the truth, just tell me the truth, not him
Al will likely never understand his disease and the severity of it…but there’s nothing that can change that…All any of the therapists or you can do is help him through each day to meet his immediate emotional and physical needs…and you take care too…Diane
i think so too, I mean how would it be if the therapist acted like it was a pain to even try anything? that would be worse? I don’t think he will understand either, and the therapy is helping him for a while longer, so i think it is good and he should just enjoy the day!
Praying for you and Al as the nurses and therapists don’t always understand how he’s going to take what they say. 😦 I am glad that he’s doing good there though, in general, and able to do the therapy exercises! That IS something! love and hugs!
i think he is happy there, but he needs to quit asking so many questions!!! lol
This is so tough. Anthony told me yesterday that he was getting better and I could bring him home for a few nights. I skirted around the issue and didn’t have the heart to tell him ‘you are getting worse.’
Al is the kind that the staff should not be telling him he is getting so much better, because he just doesn’t understand