I am so angry with myself, because I can not get the change to take place from deep within me. I have had prayers. I have many friends, and yet it only takes one moment and my heart is again breaking. I am too much of a softie. My heart expands too big. I am not tough enough around the edges.
The only thing I can say is that today, I walked out of the facility with no tears. My heart was in my shoes, and I came home and played my Time Capsule I made last evening over and over.http://wp.me/p2g4Y2-46d
I had my water class this morning. I actually laughed and talked much more than I used to. The teacher asked me to bring in a poem that I have written. She wants to read it herself. I pondered on that, since she doesn’t really know me, but she says she wants the honor of reading an upcoming publisher’s work. I couldn’t help it. I laughed. I felt bad for laughing, but I know I will never become what she is suggesting.
I told her I was laughing because I was embarrassed by the nice complement, and thank goodness she believed me. I had a great time exercising and socializing. Next Thursday is when this poem will be read.
I showered and changed and went to see Al. I saw that he was sitting in the new dining room. He was upset. Not at me but at the changes. I think it is so difficult for Al to accept change like the rest of us. It takes him too long to digest, but some of it he did get.
The kitchen staff had scribbled out the breads on his menu and this upset him terribly. So now he had been moved to a different dining room, had his straws taken a way and no breads. That is a big amount of change at once. I convinced staff to let him have the garlic bread as that is his favorite bread, and they agreed.
Al was throwing a temper tantrum over the changes. His tremors were so bad that he knocked over his dining partner’s water-glass. He was crying hysterically, and then started to swear. I explained that if he was not willing to stop eating more than one snack at night, they were going to take something a way. He did understand this. He knew that he was eating more than he should have, but no one was stopping him either.
The nurse then came over and tried to explain about Al’s heart and his weight gain. I even piped in and told him to try to go back to when he was here at home and have just one snack again with his pop at night. The problem is, that by law, the staff can not tell him no on foods.
It is very possible that with the fit he threw he may get the breads back, I don’t know. He would not calm down and so the nurse pushed him back to his room. I stood in the shadows and let the nurse try to talk to him. She looked at me and I tried, but nothing worked. He went on and on about how every one wants him to drink water only.
They want him to starve. He asked the nurse to go a way and the only one he wanted to stay was me, but the nurse looked at me and said,” If he doesn’t settle down, we will be forced to call a Psyche Unit”.
Unfortunately Al heard every word and got even worse, saying no one liked him. Before I knew it I was telling her,” Please don’t do this. I have had Al at these places before and they refuse to treat him because they believe this is mostly due to side effects of Parkinson’s Disease“. She looked at me and said, “Oh I was just kidding”. I thought to myself,just kidding, just kidding! Do you realize that Al has heard every word you have just said! You now say you are kidding and now look at him. He will not settle down and probably will not eat.
She looked at me and said ,” He needs a time-out. I suggest you go on home”. Al and I looked at each other and I told him I would be back Friday, but maybe I will go in tomorrow. I will definitely call later today.
I have always looked at myself as the one solid thing Al can count on. I am getting a little tired of being told to go home. Maybe I can say nothing, maybe I can do nothing, but I can sit there with him, and he will know that he is not alone.