I didn’t know whether to go hide in a corner of my room or write to my friends on here. I have tears in my eyes as I have found out the truths that I have been searching for.
I look outside as the snow softly falls and watch it begin to cover the grounds and roads once again. This is what part of me wishes for. Someone cover me with a blanket and bring me comfort.
I would give anything in this world to have my parents back. I would definitely risk the snow storm in order to be in the comfort of their words right now. But alas, I know this will not happen.
I have always believed that God knows all. He works out our problems to our good. I have to cling to this as I have already shredded the ends of the rope hanging right above my reach.
I want to go into the kitchen and find anything and everything to stuff in my mouth; for food blankets me with comfort, but I will not as I realize I will pay the huge price of high sugars later on.
What I learned to be true, and as they say straight from the horse’s mouth is no program is going to allow Al‘s funeral bill to become a legal expense. The wording is wrong on the paper work and there is no way to change it as the originals have already been viewed.
I had already checked into a refund a couple of weeks ago and discovered to my dismay that of all the thousands that have been paid on it will all vanish but one tenth in a refund. This just makes me want to vomit. Not only that and please don’t think of me as hard-shelled but if he passes before me I will then have to pay for another funeral out of my pocket.
This Friday morning I am meeting Al with his driver at our doctor’s office. We will be getting Al an updated physical and also a form which will have all of Al’s diagnosis on it. Then I am to fax this to the correct number.
This in turn will be sent to another department to be approved or denied. What I didn’t know for sure until today is that this is for a waiver that will bring Al back home. He will go to a day program Monday through Friday for eight hours.
The lady working on this case told me that he is eligible and sees no reason why it will not be approved. She says this won’t take long at all. The next step will be Al receiving a case worker and she will then meet with Al and me and they will be checking out our home to see if there are any changes that need to be made for his convenience. I believe these changes are done at their expense.
I won’t mind having Al here because he will be able to go to the day programs. This is something very much he needs. After he comes home then another waiver is introduced and it will be possible that he could move into the group homes if he chooses or if it gets to be too much for me.This waiver is much lengthier and takes quite a bit longer. Either way I know that God is in charge of this whole deal. It will work out. I will have time still for me five days a week and Al will be back here.
What bothers me so bad is that the facility refuses to allow me the funeral home expense. The government sees it as a life insurance policy. I was told I could try to sway the facility to see things from my view to allow the funeral expense each month, but all they could say is we want our money owed to us.
I will never look at nursing homes again with the same eyes. I will never forget them suggesting to me that I sell Al’s personal things out of his room to help pay for his own funeral. First of all he doesn’t have anything of funeral expense value. I will never forget them telling me they don’t have time to chat with him.
I would rather have him here where I know I love him and he will get better care than he received there. Yes I will be involved again. Yes there is a chance he can go to the group homes eventually, but for now, I refuse to see my brother slip into a deeper depression. For now I am thankful for the waiver to release him from their greedy and non-caring fingers. For the rest of it? the future for Al and me? I have no choice but to place it in God’s hands. He will never do Al or me wrong. I have to believe and trust that God will help me with Al here at home.
I went back and read some of the posts I had written a few months ago, but for some reasons I am not as afraid and worried. Al is weaker. He can no longer come at me. He walks very little and we won’t be together 24/7. He will have a life of his own and he won’t be treated bad nor shunned.
The tears flowing from me now and the urge to vomit come from the heartless people who won’t show any compassion for another human soul. I will not beat myself up for the what I have done’s, but I refuse to keep making the same error over and over.
As Rose would say on the Golden Girls, this facility can all go to He double hockey sticks!!
My one friends uses a common phrase that comes to my mind right now. God is good, God loves me, and life is what it is.
Oh and by the way friends, I prayed so many times for God to save the big snow until after I went to this important meeting for Al. I don’t know if you prayed also but thanks if you did. I know there is a God, I don’t have to see his face, I can see him at work. God held on to those big snow flakes. All there were was snow flakes gently falling. The streets were clear and I was able to go to the meeting and come home. About fifteen minutes after I returned home God let loose of those flakes and now it is snowing like crazy. All the roads are snow-covered and so is my car. Thank-you Jesus for answering my prayer and watching over me and Al. I praise your name and sing hallelujah!
Related articles
- How Can I Pay For a Funeral? (imsorrytohear.wordpress.com)
- False Creek residents dead set against funeral home in neighbourhood (theprovince.com)
- Funeral home Los Angeles: Provide efficient facility of burying the loved ones body (bobsharneinfo.wordpress.com)
- Parents of high-needs autistic children at a loss, as residential care centre closes (metronews.ca)
- Judge to decide if MN can force funeral homes to buy unnecessary equipment (watchdog.org)
- Los Angeles cremation: Acquired for getting required look of the place where the loved ones are buried (bobsharneinfo.wordpress.com)
- Funeral home to host 65-year school reunion (metronews.ca)
- Know Your Rights: A State-By-State Guide to Consumer Funeral Rights (imsorrytohear.wordpress.com)
- Rahway Funeral Home Serves As Movie Set (njtoday.net)
- Ohio couple ties the knot at a funeral home! (pix11.com)
I am glad positive changes are coming for you and Al.
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they have to, what else is left…………….thanks Ivonne
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It doesn’t seem right to like this post, but I do so to let you know that I have read it and my heart (for what it is) goes out to you. I know you are going through something I can’t comprehend, and I won’t pretend to. I have never been in the situation you are in. As for the people on the other ends, they could at least offer something! It is sickening that most of these companies are only in it for the money and that their humanitarian side goes out the window the moment they step into work.
{{hugs}}
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you may have not been through it but I can tell you do understand. For this I just want to give you a big hug. Thank you Alastair for being a good friend to me
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Any time Terry.
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I agree with Alistair, it seems wrong to tick ‘like’. Even though it is now time to have Al back home, I do think you needed a break. Keep strong my love.
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thank you Elaine. I am going to think positive thoughts about him coming home
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Hugs to you. And to Al.
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thanks my friend
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Finding the truths is the best thing that I read here. Once you find your truth, and face it then it can’t damage you further. I hope you find that writing here was your best option. You are never alone. Someone will and does understand. xx
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it did help. I didn’t seek out the corner. I thank you and all of my friends for being such a blessing in my life
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Honey, I missed what is ailing your brother. Will you share? My own brother suffered with a mental illness., If this is the case then my heart is with yours in your choice.
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My brother is mentally challenged. He is also a heart patient, one heart attack and one small stroke, congestive heart failure. Five years ago he was diagnosed with Parkinson’s Disease. I have cared for him all these past five and one half years and then placed him thinking he needed more help than me. Now I think I am bringing him home soon
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Hi there. How are you? I have nominated you for the Liebster Award!!!
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Dear Terry, know that you have done, and continue to do, what’s right for Al. It was a good thing for both you that he’s had the nursing home experience. And it’s good, for both of you, for him to return home on different terms. With God’s love and guidance, you’re doing well, my friend! xoxoM
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oh bless you Margarita for understanding. I just know everything will be alright. God is doing all of this for reasons I may not be aware of, but he does
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My heart goes out to you. Wishing you Strength and Peace during this difficult time.
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thank you Leila so much!!! blessings
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I do like this post Terry, I know it is hard but you seem to have found the peace and the trust to allow God to work his will, sometimes that comes at a great cost, and the sadness is there, but also the relief. God bless you my friend.
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oh Loopy you understood my post to the letter T. thank you so much. I have found peace as I know I have tried many ways and now I will let God guide me through the rest
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Terry …It is beyond me what the legal ramifications are but it sure sounds weird what is happening…do you have legal support…because I think you need it…
Anyway, I hope you work things out and it is good for Al and you…take care Diane
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all the government is behind me and I guess they are about as legal as they come
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Another agreement with the other comments about clicking the “like” button, but I I did click it because I do like that Al will be so much happier at home with you. I don’t really understand the details about the funeral expenses, but then I have never been good at understanding those types of things. I hope you are able to straighten that mess out and at least get a little peace of mind, and I hope the doctor’s report is what you are hoping to hear.
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thank you Becky for stopping by to chat. The physical will be a piece of cake. The diagnosis form will be also. The facility gave me a paper that has all of his diagnosis on it, so the doc just has to transfer them to the right form!!!! but still keeping my fingers crossed adding some good luck!
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Hi Becky, I have nominated you for the Liebster Award!!!
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Thank you so much, Terry!
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you are very welcome Becky. I hope it brightens your day!
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Thoughtfulness like yours always brightens my day!
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ohhhhhhhhh thank you Becky………
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((Hugs))
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thank you hugs back!!
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One day at a time.
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yes you are so right, thank u for reminding me
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Love that you can find the opportunity to praise God even during the tough times. That’s inspiring to me, Terry. Thinking of you and sending good thoughts your way. I know God has an awesome plan for you and for Al and whatever all of this stuff has been that you guys have been going through has some meaning, somewhere, Keep trusting in Him and giving Him glory and He will deliver both of you. Hang in there my friend 🙂
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I will cling to God because it is the only way to live. Thanks Brian. you are such a good friend and a comfort through your words………….hugs and God bless
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That money situation sounds really dodgy. Could you see a lawyer?
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I have talked to the government who rules our country and laws, they say it is up to the facility and how much compassion they have. obviously they have zero amount
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I can’t click Like but I can tell you how much I admire your unselfish love and devotion for your brother.
You have made what sounds like a good compromise, because you will not be burdened like before but you will still be able to care for Al.
God bless you both. x
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thank you so much for this comment. I wasn’t sure what kind of comments I would receive
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Anyone who would comment negatively does not have your or Al’s best interests at heart.
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Hello my dear friend, I have nominated you for the Liebster Award!!
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Thank you! You are so sweet 🙂
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not all believe he should come home…….
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Only you can be his advocate…do what you feel is best…I don’t know what is right or wrong…but, you have to let your insight lead you sometimes…I feel we know when God is leading us in a certain direction…Hopefully your short respite has helped you gain some strength…
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it definitely has. but something has changed. I feel different. Like God is doing all of this. He has prepared me for our final journey. I can do this through God. Hope to see you again my friend
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I would love for us to meet again…who knows…life has it’s ways!
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