Good Visit

Main dining room

I was a little freaked when I went to visit him today and could not wake him. I realize he started a new medication for depression but it is one that is to take a few weeks to get in the body to work.

The aides were able t finally wake him and he had his shoes put on and helped into his chair. Off we went to the dining room. While  he was awake he was different from yesterday.

Instead of crying and arguing he smiled and said hi to every person he saw. We ordered our lunches and he chatted with me. It was nice to see this change. Are you sure Doctor, that this medication takes a long time to work?

Maybe he was just having a good day. There was a note waiting for me. When I read it, it said, My heart is aching for Al. I have never seen such a bad case of PD in my entire career life.

Wow, this note validated something inside of me. When I hear staff say that Al is just being obnoxious or being rude or mouthy, this brings a little inner peace to me. It is more the PD than it is Al. He can get mad like the rest of us but he is generally not rude and mouthy for no reason.

We ate our lunches and then he fell asleep. I woke him up and took him back to his room. He asked me to stay for a while which I did. I had him stretch out his legs in his recliner. I noticed that his feet were curled up towards his body and his knees would not straighten completely out.

I showed him  how to flex his legs explaining he might help some of his pain by this exercise. As soon as I said this off he went into drift land. I let him sleep a few minutes and then I woke him up and told him I was going to go home so he could rest. He looked up at me and smiled and waved bye.

All in all it was a good visit. I hate seeing him so groggy but I like not hearing oh my legs, oh the pain, it hurts so bad…………

35 thoughts on “Good Visit

  1. I have no authority to comment on anything to do with writing and/or publishing. But it seems to me you have a valuable resource for people dealing with Parkinsons, or even special needs siblings. I hope you will eventually share this work beyond the blogosphere.


  2. I’ve just arrived at your blog, so I don’t know much of what is happening (I have to read a bit back). But I do relate to you. Maybe not in the same way, but with a similar disease scenario.
    I watched my great-grandmother – a strong person full of vibrant energy – have her cheerfulness and personality swept away by disease, and constant mood swings that went from bad to worse. I was very young at the time, but it was so painful to me… I still remember it vividly.

    Forgive me, I know it’s not a very comforting post, but I really wanted to say that.


  3. Happy over that you had a great time together and that he was happy … I understand there is a big mess of emotions inside you to what is happening with AL, but the main thing is that he are happy and contempt in his disease and that he are free from most of the pain. Great news this post.


  4. Terry, maybe it’s the hand of God. Remember how I told you that He loves Al even more than you do? He also loves you more than you love yourself, and He knows how much you and Al are able to handle. That’s why He’s given Al a doctor who cares enough about him to give him some relief from the depression. Also, a spirit of heaviness transfers to others very easily… Don’t you notice that when you visit Al, and he is depressed, you walk away carrying that same heaviness? The Lord knows that you are unable to fight against this, but as long as you keep casting your cares on Him, the battle is His, and all you have to do is be still in His presence and see the salvation of the Lord!

    Meanwhile, keep praying, my beloved sister, and I’ll keep on praying with you, as will your other brothers and sisters in Christ.

    Much love,


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