Al and Me on Mother’s Day


By noon this morning I had received two text messages from two of my kids telling me Happy Mother’s Day. On my way to go see Al I stopped at the mail box and got my mail. Inside was a beautiful card from my daughter who lives outside my area. There was a very useful gift card inside. I had never received a gift card and felt a little embarrassed when I had to ask my daughter what to do with it.

She called me this afternoon and wished me a Happy day also. Then tonight I heard the door bell ring and there stood my one son’s better half and their two kids. They brought me a card and a pretty necklace.

I felt pretty darn special, let me tell you. It was real nice to have one day off from the bad crap I have been dealt with this week.

When I saw Al today it was a complete turn around. No, he still has Parkinson’s, but his attitude and personality was wonderful. The new anti-depressant patch had obviously worked. He cut up with jokes with all the staff that walked by.

He talked to me about different shows he had watched on TV last night. He even did some embarrassing things at the dinner table like farting. Each time he did it he just giggled. It was making my face turn red but he was really enjoying his musical talent.

The only thing that bothered me besides the toots was his one hand. All five nails were gray and stayed that way the entire time I was with him. Inside where I can’t see the Parkinson’s is doing its thing. I tried for the most part to ignore and not keep glancing at them. His other hand was normal color. I don’t know what that meant, one being gray and alvin graduation picturethe other hand pink nailed.

We had a good time. I took him soda and snacks for the week, and he sent me home with raisins and miniature snicker bars. He couldn’t get them opened by himself and when the aids helped him he couldn’t chew them. His jaw must be weak or his mouth or his chewing is becoming weaker. I know that he still chokes on foods so no more gooey snack foods for him.

So far we have taken out of his foods, any kind of stringy meat like roast. We have taken out jello because the tremors won’t allow him to keep it on the spoon. French fries have to be monitored if he eats those. Milk only once a day because of choking. Cake icing seems to get stuck in his mouth, so I monitor this. He can’t have any kind of white meat chicken, and all meats have to be ground. Most meats even ground are starting to make him choke. We are training him to take a drink after each bite of meat.

I stayed with him until he fell asleep in his recliner. About an hour ago I got a call from the facility. He fell again. No one was in his room, and according to the nurse, he must have reached behind him and unhooked the bed alarm and stood up to go to the bathroom. He walked three steps and fell hitting his back on the corner of the bed. She stated there are no bruises and no scrapes.

I was calm, and I do know that I have seen Al stand up and head for the bathroom and I will instantly ask him what he is doing. He says going to the bathroom. I ask him if he is supposed to be walking and then he says he forgot and sits back down. I always sigh a deep relief because when he stands it is only seconds and he is down. I think it is his Parkinson’s/Dementia causing him to think he can walk.

I hope he will be alright. My internal alarms are on alert basis now. Not only from the fall but it seems about every two weeks we head to the ER from more of those internal tremors in his heart and chest, and it has been two weeks. I am keeping my fingers crossed on this one.

35 thoughts on “Al and Me on Mother’s Day

    • I would never be that person who tells others they don’t know anything that I am going through, but, you have a very valid point. The problem with PD is it changes daily. It slowly crawls through the entire body from the eyes to the heart. I don’t always see the damages as they are internal. You go through good days and bad days as if he was a cancer patient. But, with a cancer patient there is an ending date usually, with PD it can take up to 20 years to find eternal peace for the patient. thanks Sheri, I could just hug you. Why? because you understand

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  1. Happy Mother’s Day Terri. I’m glad you had a nice day and so sorry that Al fell again, but it sounds as though he got off lightly this time, no scrapes, no bruises. I’m glad.

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  2. Happy (belated) Mother’s Day, Terry. I’m glad your kids did some extra special things for you–you sure deserve it. When I read about you and Al and the place he is in, it always makes me feel as though if it were not for you, everything would come tumbling down. What has this world come to where the sick are treated with such neglect? The thought you put into every minute of Al’s routine is so commendable. Don’t these people get PAID to do what just comes natural to you? Argh! Love the old photo of Al, btw. πŸ˜‰
    Hugs… A

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  3. Don’t know what to say, except that I’m sorry to hear about Al’s fall and difficulties eating, but glad to hear you had an enjoyable Mother’s Day.

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  4. So glad that you had a good and pleasant day … for you as a mum and together with Al. I wish your every day could be like yesterday. You know my stand on those silly days.

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  5. So pleased that your children came through for you on your special day. Al sounds like his old self in the tooting dept LOL. So glad you both had a good day. Just wish they could attend him better. Love and hugs (((xx))) my friend.

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  6. So good you had a nice day in between, you deserve it. Good your children gave you something and then a nicer day with Al. A little breather, and then Al’s fall, hopefully it is not that bad. Thinking of you and hugging you! Love Ute

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    • Al wasn’t feeling good for a couple of days. Today he seemed in better spirits but was in a lot of pain in his legs. I don’t think we can get it all right. We take what we can grab from each day

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