This has enabled him to eat and drink by himself. His chatter is constant and he smiles more. I think he has more pride in the fact he can do a few things for himself again.
Not being able to feed himself I notice this is most humiliating to him. He can cry easier at meals than any other time.
I wish, let’s say I am always wanting more. I wish that he could stand longer. He can not. In fact, I think he can stand less. The new medication has helped in the area of tremors and also in less sweating.
He sweats when he has to stand to be changed or transferred. His labored breathing is still heard when he has body activity. The side effects that I think are from the medication are more confusion. He is sleepy more often than not. He stutters quite a bit now, but at least, thank God his tremors have lessened.
All of you that have prayed over Al for so many months, God has been listening and has answered. I will not get my hopes super high. I realize that medications only last so long before the body gets immune to them. I will keep my hope at bay and within reason. Sort of like that game at the fair where you ring the bell with the big pallet. Oh, it is called test your strength. I have never played it. I don’t want to have some gadget tell me I am weaker than I think. Here is a video of the game being played I am talking about.
Have you ever seen hands tremoring so bad they can’t be used? Here is a tiny video of this happening. This is what Al’s hands were doing until this week.
So all I wish for now is the medication to last for a while before we have to start increases. I am afraid if there is an increase Al will end up being bed bound.
I trained someone this morning for the coming Wednesday. I want to attend a very important auction and I could not take him. I felt like a real teacher. This will be Al’s first time staying with a caregiver in his position he is in now. She is very nice. Al asked all sorts of questions. I could tell he was not as much interested in who she was about but if I was coming back.
So thank-you everyone for the constant prayers. I really appreciate them.
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