Chapter 17

My mind wasn’t catching up to what was really happening. I had been visiting Al and trying to concentrate on my job. I couldn’t get a handle on the fact that our Dad had died the week before.

Now I had this estate to take care of and the phone call from the doctor put my mind at a slow halt. What was I doing? What was I going to do? I immediately went to the hospital. I just couldn’t believe Al drove himself to the doctor when he was having a heart attack.

But I have to keep in mind that he was mentally challenged. All he knew was that he was hurting. Once I got to the hospital it was confirmed that they were transporting him to Fort Wayne hospital where there was a  heart floor.

I waited with Al until the ambulance came and then I stopped at the gas station so I could buy more smokes. I was a nervous wreck. I thought my head was going to explode. It was just too much at the wrong time.

I sped all the way. I beat the ambulance by a few minutes. Once I registered him they prepped him for emergency surgery. It was after he was announced alright that being his sister was not good enough.

Here was a mentally challenged adult who had always lived with our parents. I was not his legal guardian so I fought for everything I wanted Al to have. After a few days he was dismissed and I was allowed to take him home.

I ended up spending that night but still I was thinking I will just keep a good eye on him. I will check on him every day. I can do this. As I spent more time at the house I discovered Al had such a good routine going that he didn’t have any decent food in the house.

In the freezer was seven boxes of generic breaded chicken patties. You know, the ones that you aren’t sure if there is really any chicken in them? He also had several packages of hot dogs. It is no wonder he had a heart attack.

As I went through his room thinking I was just going to tidy up, I began to notice things weren’t right. There were health issues here. Ever since Mom had died, Dad never opened the house again. Central air or heat was on all year round. The windows had not been opened in seven years.

I found white mold growing inside dressers, under the sink, on several floor moldings. I am a clean person and seeing this scared me for Al’s health. I went home and got some clean clothes and decided to spend a few days since I only worked Friday through Monday mornings.

Everything Al did was on routine. If his routine was messed up or changed Al was lost. He is mentally challenged in the cognitive area. This is the only way he made it for seven years after Mom died and Dad moved on with his life leaving Al to fend for himself. Al stayed with his routine.

He bought groceries on the same day each week. He ate the same food for breakfast 52 weeks out of the year. He packed the same lunches. He drove the same route no matter what the weather was. He went to ball games in the winter. He went to auctions on Saturday nights even if there was six inches of snow on the ground.

On the day that it would have been laundry day I decided to help him out since he was healing from his surgery and so I gathered up his laundry and started to sort. I noticed there were no white clothes to wash.

I went back in his room and asked him where his undies were. He said, ” I don’t have any. They all got holes in them.”

” Well why didn’t you go buy some more?”

” I didn’t know I was supposed to,” he told me.

It was at that moment that some of my fog cleared and I realized Al had been just getting by. I sat down on  his bed and talked to him about me moving in. I wasn’t sure how he was going to take it. He had grown so accustomed to hiding when Dad was home; I wasn’t sure how he would react to a new change and it being a family member.

The conversation was fairly simple. ” What do you think about me moving in and helping you out while you get better? I could help you pack your lunches  and fix your suppers through the week.”

That part must have interested him. Before our Grandma moved to Florida to live with her daughter, Al always went to her home for supper. He told me I could move in. I made sure he was going to be alright for a while and then I went to my apartment and packed a week’s worth of clothing.

Without me realizing I was already beginning to take care of my brother. For a few days I spent my time between taking care of him and cleaning the house. I scrubbed down mold, cleaned bathrooms, swept and opened the windows to get fresh air in.

Al had a doctor’s appointment. I went with him so I could hear what the doctor had to say. The doctor reported that Al could go back to work on light duty. This made Al angry. He was concerned about what his boss would say. All I remember Al asking was, ” What is Scott going to say when I don’t do my job? He will fire me, I just know he will.”

It took a while to get him calmed down so I explained to him that we would go talk to his boss. I had  Al go with me inside to where he worked. I explained what was going on and they were happy to let Al go back to work, even on light duty. Al felt better and the tears disappeared. To celebrate I took Al to Wendy’s to eat.

He had no idea what he was supposed to do. He didn’t know how to order food. He told me he didn’t remember ever being on the inside of a restaurant. I am sure he had been but it bothered me that maybe it had been so long he didn’t remember.

Slowly I taught Al about the other part of life. The fun parts, other than work and sleep. I taught him how to understand the menu boards. I showed him how combinations came with a sandwich, fries and a drink. It wasn’t long at all when I would take him to eat he would stand right up there at the counter and say, ” I want a 2.” The employee and I would chuckle together because she was thinking that he was so hungry he couldn’t order properly, but I knew that this is the part he understood and this was the way he was going to get food.

Alvin home

Fair Day, Good Day

When Al first comes home from the Hospice House he is the best. So we take advantage of these times. Today is one of the new normal days he doesn’t go to Day Program so his body can stay rested.

But today was a special day. It was Street Fair day at Day Program. I didn’t know exactly what to expect. Would the parking lot be crowded and I would have to push his wheel chair a mile? Was it out in the parking lot? What would be going on.

We pulled into the parking area and nothing seemed different. When we walked in anyone that saw me pushing Al came up immediately and said hello to him. One of the office people was in view and Al told her immediately, ” I can only come three days a week now. My body gets too tired.” She gave him a pat on the back and said, ” I know Al, but we still want you here. Even if you have to drop more days, we still want you here. We love having you with us.” With that, Al wept a little but not bad.

I whisked him off to the courtyard where the little fair was going on. Now for you and me we wouldn’t even call it little. We may call it a speck, but for people like Al and the other clients it was a change. A chance to get outside in the fresh air. A chance to visit with their friends. A chance to have some fun.

There was some tables sitting decorated with different articles representing what each class was based on. There was a game of corn hole, a little miniature golf course and a batting cage.

One of Al’s hero, named  Andy  was in charge of the games and he took Al from me and pushed him to each game. Hand over hand Al was able to play each game. He beamed from ear to ear.

I couldn’t help let out happy tears as it was so wonderful to see this caring man helping Al to enjoy the hour. For every game Al played, he won a plastic dollar. In the end he had gained three dollars and turned them in at the gift area. He bought himself a key chain, a deck of cards and a new hankie or bandana.

Al was thrilled. His head was beginning to hang pretty far. A sure sign his body is tiring out. Scott helped me get Al back in the car and of course Al said he was hungry. I took him to his favorite soda shop and he ate a whole cheeseburger and french fries.

We came home and I changed him and laid him down. He is already sound asleep. I am so proud. The part of me that is human didn’t really want to take him. I was thinking of the heavy wheel chair, loading it and unloading it is hard on my body. But he had a good time, and I had a good time knowing he smiled so much.cornhole2mini-golf-1-big

Daily Prompt; Standstill

For a moment today, time stands still — but you can tweak one thing while it’s stopped. What do you do?

Photographers, artists, poets: show us STILLNESS.

Often the world buzzes by me

My mind can be confused

But in the midst of everything                                                                    time-standing-still-katja-zuske

My heart and soul can infuse


This world we live in is big

When you think of all it can do

But in the middle of rain drops

My heart and soul stand with you


Days are busy nights are slow

Never all is done

But in the end I can stop and breathe

As my heart and soul have won


Written by,

Terry Shepherd