Daily Archives: November 2, 2013

You Must Be Curious

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M.S.A badgeM.S.A. coverM.S.A. logoAl and Rhino, Nov 1I have had so many new visitors lately. Word sure gets around when you are speaking of illness.

I am so grateful for all the support I have received from each of you.

Today just has been pretty bad. Al started during the middle of the night with terrible nightmares, that lasted until 9am this morning, so I have been up a long, long time.

He has had terrible tremors, so much sweating I have had to change his bedding several times.

Forget the house, it looks terrible but today, I don’t care.

He refused food at all until about an hour ago when he ate one small doughnut with great struggle.

Hospice spent an hour here. Medications were once again changed, some taken a way, more added.

He has seen Rhino hanging upside down from the ceiling. A conversation and discussion was taken up with the doctor.

It was related to me that now that we are in the ending stages, hallucinations are going to happen. Not from the medications, but from the brain being so messed up with connection problems.

He has been on his light more today than any other time. Sometimes just to tell me he is done, or he is tired of fighting, that he wants to die. Other times it was because he was seeing things that were not there. He asked me what blue thing was flapping in the air and I finally figured out it was the blue TV screen.

He has slept little, he has been hot, cold, hot and more cold. Sweaty, dripping, swimming, you name it, he has been wet on his entire skin all day.

Rhino the cat is going nuts in his own way. He tries to comfort Al but Al doesn’t get it or sense it.

For those of you who have not been with me very long, I wanted to share what M.S.A. actually is. It is rare, about one in one hundred thousand people get it. Many doctors do not recognize the word.

Please read if you are at all curious. All of the symptoms stated, Al has.

http://david1000.weebly.com/

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Not A Good Day So Far

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For the first time I want to sit down and give up. I think I am just tired from a caregiver’s view. I am not depressed. I feel defeated. Al had terrible nightmares all night long. He woke up screaming I don’t know how many times.

He begged for medicine. I gave it to him. I held his hand until he went back to sleep. About a half hour later he was dreaming again. The process just would not stop. This morning he didn’t want to get up, but he had to at least get washed and brief changed.

The bed was soaked from sweat. He couldn’t sit up good enough. So I either had my hands in water or I was pushing back up. I finally got it all done and changed his bed. He refused any breakfast.

I even gave him his favorite Caramel Apple doughnut and he pushed it aside. He is sleeping now. I am praying that when he wakes up he will feel more rested and maybe want to eat.

I am trying to keep smiling friends, but today I can’t even get my mouth to form in that direction. I called Hospice about him taking his medications when he is not eating. A nurse is on her way.

soul 2