11pm at night. Quietness at least for now. I feel so guilty that I have not been on here much the past couple of days, but Al has been so restless.
I have just changed him and rolled him over on his side. I pray that I won’t be up for a third night in a row. I am going to place an ad in the newspaper tomorrow morning. I just can’t do this anymore.
My neck is burning, I am sure it is muscles. I had some sort of spell today. I felt hot all over. I was actually sitting here at the computer and suddenly got hot and felt like I was going to pass out.
I knew I needed to get to the bathroom and splash my face with cold water. On the way there I leaned into the wall a little. I got light-headed. I had been to two doctors this week and my blood pressure was a little high. When I took it here at home it was the same as it was at the doctor.
I just can’t do this alone anymore. As long as he is confused and needs to be rolled so often in bed I need help. Please pray that someone responsible will answer my ad.
So far Al is saying he does not want to go to Day Program tomorrow. It is serious when he said this. I never in my life I thought I would hear those words.
The shower girl will be here tomorrow morning. According to how he is, he will either have a shower or a bed bath, and then I guess we shall know then whether he is going.
If Al is going to remain home I definitely have to have help. I need to get to the grocery store. No one delivers to homes in our area.
I have been working triple time to slow down my mind. I have stayed either with Al today or on the couch lying down. Al never slept all day but then at nine tonight he took a little nap.
I got a call from the Hospice Doctor this evening. I was surprised to receive this on a weekend. He was checking on Al and he definitely told me that the medicines he took Al off of will not shorten his life span, but neither are they doing him any good any longer.
He told me Al should not go to Day Program and I agree, but I am still leaving it up to Al and how he is feeling, but it seems Al is figuring it out all on his own. The doctor told me that each day Al will now become weaker and each time he is made to move around he will suffer more and more.
He stated a weird thing when I really think about it. He said, ” Each day Al is one day closer to dying.” I already knew this. I think doctors and nurses beat around the bush. They have ethics and politeness when sometimes I would rather hear the bold truth, but then again, why. It doesn’t matter. I try to make each day count.
When I roll him it is a huge struggle and I get stressed because I feel like I can’t do it. I know Al knows it is hard because he kept telling me he was sorry. Of course I would feel guilt that I verbalized my groans of pushing and moving and I would tell him it isn’t his fault, that I know if he could help he would for sure.
His tremors just this weekend have curled his toes up bad. He has a large looking hammer toe now from the curling. His arms won’t stay to the side of his body. They repeatedly make their way back to his stomach area.
No matter when I went in to check on him his hands were holding each other and he was beating himself in the stomach from the tremors. I have to wonder if I can get his shoes on him.
With all of the doses of pain medications no one can seem to get the tremors to stop. I believe in my heart that the only one who can stop those tremors is God.
I don’t know the time but I am thankful that I have put up our Christmas Tree. I told Al I was going to put up white lights for him in his bedroom today but I never made it to that. Hopefully tomorrow.
I let the house go today. I fixed a meal. I cooked chicken legs and de-boned them. I cooked noodles in the broth and made instant mashed potatoes. I also made a pudding for Al. I took the seasonal pumpkin pie spice Jello pudding mix and added beaten cream cheese and a container of cool-whip, then enough milk to make it the consistency he needed.
He ate one doughnut yesterday. Today he ate about five bites of pudding two different times. He also ate about a fourth of cup of noodles. He didn’t eat much but he ate more than yesterday. I could hear his tummy growling but he is barely eating.
Well the day is over, hopefully. I am headed to bed to get some much-needed sleep. Keep us in your prayers for a helper to arrive. Hugs to all of you for your love, friendship and support. I couldn’t do it without the emails, phone calls, and comments.