I Have To Go, But I Need Ideas


Al seems pretty content in his new air mattress bed. He got his bath this morning. I think he likes his bath aside from the fact he is turned so often.

We have had big issues with discovering new ways to communicate. We have used flash cards.flash cards We have tried to use fingers for yes and no.

We have tried blinking with the eyes, and once in a while, this still works.

We have tried spelling. I am running out of ideas as his voice becomes softer and his lips barely move.

If anyone has had this sort of issue to work with; please share your ideas with me.

I made vegetable soup today. It gave me something to think about other than Al. It was pretty good, but not as good as my Mom’s.  Here is a photo of my soup.veggie soup

Here is a photo of Al and one of his nurses.Alvin and nurse

I try very hard to find a good thing each day and today it was coffee. A sample in the mail of a new flavor from Folgers.folgers

Oh friends, I am sorry to cut this short. I could hear Al’s voice. I went to him and I saw that his hands were more swollen than usual. As I checked him over his one leg is quite swollen. I went a step further and checked his temperature. It is 102.9. I have to call Hospice. I shall talk to you later friends. Love and hugs.

42 thoughts on “I Have To Go, But I Need Ideas

  1. Terry: I haven’t faced the voice challenge yet. I’ve had times when Tom has elected on his own not to communicate but, that comes from severe clinical depression. I’m happy an air mattress was provided for Al. I hope this relieves those pressure points that create such problems.
    Your vegetable soup sounds good and should be nice and healthy for you. I’ve slowly been cleaning out the freezer and the refrigerator freezer and making myself use what I already have. It’s a lot easier to take a recipe to the store and buy the ingredients I know I don’t have. I’m totally spoiled as Tom used to do all of the cooking or we ate away from home.
    Hang in there, my friend.

    Like

    • I find myself eating lots of home made soups since Al eats nothing but ice cream. I use what I have left in freezer as Al eats no more meats. I have to be creative, but it can be fun, I guess. Pray for quiet release please. Hospice said Al’s body and heart are shutting down. There is no hope left

      Like

  2. Sorry to hear that. With my Mom we would say look to the right if yes or look to the left if no and vise versa and sometimes would ask the question several times to verify.

    Like

  3. Terry, you are an inspiration with your goals to find a good thing each day. I know it is not easy to care for Al as his needs increase over time. I am sending up prayers for both of you.

    Like

  4. Hi Terry-
    Do the flashcards have words only? Or – do you have common phrases too?

    Sorry to hear that Al has a temp. Hope the Hospice can help ease the fever & help with the swelling. Will keep holding you & Al in my prayers.
    {Hugs} to you both

    Like

  5. When you try all these different ways of communicating, what is it that is stopping it from working? Is it that he can’t see properly, or is that he can’t move/control his movements enough so that you can tell how he is responding, or is it that he’s not able to concentrate on the process sufficiently, or something else?
    Your soup looks yummy.
    And free coffee, yay!
    I hope you manage to get the temperature and swelling under control again soon.
    All my best to you both.

    Like

    • Hi Al, I had a terrible night of nightmares and real tears. Hospice got the fever down but temporarily as Al’s heart is shutting down. Thank you for standing beside me

      Like

      • Oh I am sorry. I understand. Remember though, the good times. Keep them there with you. All the time. Remember the trips to the boot fairs, to the coca cola places. Keep them in your mind, Terry. Always

        Like

  6. Terry, I am praying for you. Thank you for keeping us updated on Al. I think about him a lot. It has been a long road for both of you. I pray he will pass peacefully into God’s loving hands. You are a great sister.

    Like

Leave a Reply

Please log in using one of these methods to post your comment:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.