I crave relaxation. I accept what I am not, which is relaxed, but I don’t like it. I have always looked at myself as a survivor. A gentle soul floating carelessly on the waves of life. Taking in, listening, and yet able to make decisions according to what the almighty God and myself feel to be right.
When that one day came last week and I ended up face down on the floor I was scared. When I felt my body quivering out of fear and heard my own heart beating hard against the floor, I knew something was wrong. I was in trouble.
As I forced myself to stand and walk to the kitchen where my blood pressure kit lay I felt each step I took my feet were covered in very thick cement. I took my blood pressure and I was only a few numbers a way from a dangerous stroke level.
I went back to the living room and fell to my knees. I wept in to my own arms as I knew that the constant state of being a caregiver had at this moment taken its tole on me. It was no accident that my best girlfriend appeared that same evening.
Although quite embarrassed at her being able to see me in this stage, I was also very thankful that it was her and not Al or someone who would think less of me.
It is odd how something so innocent can grab a hold of us. I don’t even work outside the home and yet the pressures inside my body were building ever so steadily, with no time clock present anywhere.
How can being the best sister I could be or loving someone so easily become out of hand? I didn’t have a boss hovering over me. I had no time frame of my own and yet the life of my brother, his very own illness, took on a mask of its own in my own body.
Why didn’t I see it? What made me think I was invincible? How could I not recognize it? I don’t have the answers. I can assume that I was so involved with Al that I didn’t recognize what was happening.
What I am thankful for is my friend being here. My rock is what I call her. With her guidance and understanding I dialed my doctor. I set the appointment. I allowed my pride to be lowered. I let her drive me to the office.
I have a real phobia with medications. It doesn’t matter if it is in liquid, pill, capsule, I fight taking anything. I know why I do it, I just haven’t figured out how to get past it. Years ago when I was first diagnosed with Diabetes, the doctors kept giving me too strong of medications.
I would be doing something, anything, and I would pass out. It didn’t take long for my mind to connect pills and passing out was a bad thing. Now, years later I still struggle, but can take something with the help of someone being with me when it is a brand new prescription. I wait for two hours. If nothing happens I know I am safe and can continue on with the taking of medications until the bottle is gone.
How silly is this? Am I not stronger than that? Aren’t I in control of my own life and old enough to make my decisions. How can something from over twenty years ago still live very much alive within me. I don’t understand, but I know fear of bad things takes over and I have not learned how to crush it down to return more to myself.
When we get involved with things to do in our lives we don’t take the time to relax in between. We are rushing here and there, sometimes going nowhere, and yet we are always in a hurry.
When did life become so mad? Where did it start, the feeling of having to hurry? When did we forget to stop and say thank-you for living this day, or look at the beautiful skies, or see the pretty flowers.
Life can be fabulous and then life can become blurred as we walk in our all too familiar paths each day. For me, I had to hit bottom. No matter how much I love my brother or want to do the best for him, I have to take the time to remember who I am.
I have to remember that I am important also. I need tending too. My heart, my soul, my body need rest too. Is this wrong to think of me when a soul is laying in that bed waiting to die?
I have begun to realize the answer to this is yes. It is imperative that we give our mind and body time to digest what we are seeing and feeling. We must nurture our bodies along with allowing peace to enter our souls.
We are humans only. I am no super woman because I feel love for others. I have to slow down. I have to let others pitch in. I have to lower my pride and allow others to sense my tiredness.
It has been a rough journey these past six years. I have watched my brother go from a strong giant to an infant laying in a bed. I have had to see him come to the point where he can do nothing for himself anymore. I feed him from a syringe. I allow myself to break down now. I cry the tears.
There is no good reason to hold back anything. Maybe Al needed to see me cry. Maybe it was one way I could show him how much I loved him. Although I have told him many times he has my permission to leave and go to heaven, I can say it now with a reality in my heart that he and I both, will be better in the end.
Great written 🙂
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Thank you very much!!!
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I consider myself a small speck in the cosmic world of loss and madness, I smile and cope; I have realized that one of my arms are longer than the other…When I discovered the reason was from reaching back and pulling my A#* up off the floor in order to continue on each day; I understood much more about who I was and what I should let the world see. I suggest that you begin work on that book about you and Al, it will take your mind back over times you may now understand better than you could at one point. As you already know writing is therapeutic. I don’t think that we will ever truly come to grips with what takes place in life, why some ride a silver cloud while others are dragged along the ground like a slowly deflating balloon in the wind. Take care, Ann
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Thanks so much Ann for your honesty. One of the best things I like about you is that you are real. What I do as a caregiver is a tough job. I only pray that each day I continue to be the best I can for him while I stand close by and watch him leave this earth. You are one awesome person. Thank you
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These days continue to be hard times for you, and I am so glad that your friend arrived when she did. Our bodies simply refuse to let us ignore them and then, of course, we make the hard times harder on ourselves. I wish peaceful thoughts for you that take you to memories of easier days. They will surely come again. Believe me.
Sheila
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Thanks Sheila. I know that you have been through a very similar situation as mine, and yet you came out even stronger than before. I appreciate your comment. Don’t change who you are!!!
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Continuing to lift you and Al up in prayer, Terry. Much love, Sheri : )
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Thank you so much for the needed prayers
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You continue to be a blessing to so many of us. Your words today rang so true to what I have been going through. We share that struggle with trying to live up to our expectations of being the best caregiver possible and also trying to take care of ourselves. Thank you so very much for sharing. I look forward to everything you write as it means so much to me.
Hugs…
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Thank you so much my dear friend. I feel like we walk the same path only following in each others footprints. We learn from each other and we gain new insight to what this illness is. I love having you not only as a friend but a support rock. Bless you and big hugs
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Terry you do need to look after yourself and not forget about that. I know easy said, but you can see what happened. It all takes its toll and you have been working hard emotioanally and physically. Please take care of yourself! big gentle hug!
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I should have listened more intently to you a long time ago, but as usual, I thought I was incapable of falling. Thankfully I learned before it was too late
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Glad you did! I found this picture on facebook….. about this and an article, have a look in your email!
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Thanks I will do this!!
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Sometimes we’re so stubborn & so preoccupied with life & doing what needs to be done that our bodies have to take over & tell us to take a breather & have a break. Please try to take the signs that your body sends you to remember to take care of yourself too. To help your brother productively – you have to stay healthy too.
And – there’s no pride lost when asking for help that’s needed.
So thankful for your wonderful friend that’s by your side right now.
{Hugs} all around from me to you, Al & your friend
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thank you so much RoSy
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I am so relieved that your friend is there and you are getting a bit of care yourself. I love the way you have written this – so beautiful.
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thank you so much Julie. I hope the day ahead of you brings a smile somewhere in it!!! hugs
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Sweetie you have come so far. You are strong and i am thankful your friend is there to help you walk this path.
I do not know why we walk the paths we do, and who we do, but we do.
I believe there is always a reason and sometimes the only reason I have found is that by walking through what I have walked through has made me stronger and wiser.
Hugd and sending god vibes and prayers to you and Al.
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Maybe this is what this will do to me too. I know there is a reason, I just don’t know yet what it is!
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