The book I wrote about my brother Al is one of the most important projects I have done recently. Although I am very proud of Dahlia, my first book, this book is way up on the ladder.
MSA was and remains the most wicked illness I have ever run into in my 23 years of being in the medical field. I went through many emotions along with the terror and pain of watching my brother slip a way from me.
I wrote this book called, Al, his life and MSA, not to brag to show I could write another book. I didn’t write it for popularity votes. I wrote it for a teaching tool. There are so many questions and no answers. There is research but, but research takes dollars, so it doesn’t help a whole hell of a lot when very few even recognize the words, Multiple System Atrophy.
Ever changing circumstances, day-to-day, sometimes hour to hour. Various side-effects unlike any cancer.
My goal is to have a publisher do his thing with my 31 chapters. I self-published my first book, along with my dear friend Diane. It has sold but I want this book to be in doctor’s offices, medical centers, neurologist’s hands.
I know I am dreaming big, but why not? What do I have to lose by following this dream? A book that sits on my own shelf collecting dust when it could be in the hands of a family or caregiver’s hands.
Please, help me along with my prayers to locate a publisher who has compassion, heart and an inner soul who wants to help spread the word of one caregiver, a sister and the journey of MSA.
I may want to add a special note here for the sake of others. I have not located a job as of yet, so I can’t afford to pay hundreds of dollars to get this published, but I will do my very best at doing what I can to help get this out. Thank-you. Please, please share this with someone you know who may have some personal contact or interest in my goal.