The book I wrote about my brother Al is one of the most important projects I have done recently. Although I am very proud of Dahlia, my first book, this book is way up on the ladder.
MSA was and remains the most wicked illness I have ever run into in my 23 years of being in the medical field. I went through many emotions along with the terror and pain of watching my brother slip a way from me.
I wrote this book called, Al, his life and MSA, not to brag to show I could write another book. I didn’t write it for popularity votes. I wrote it for a teaching tool. There are so many questions and no answers. There is research but, but research takes dollars, so it doesn’t help a whole hell of a lot when very few even recognize the words, Multiple System Atrophy.
Ever changing circumstances, day-to-day, sometimes hour to hour. Various side-effects unlike any cancer.
My goal is to have a publisher do his thing with my 31 chapters. I self-published my first book, along with my dear friend Diane. It has sold but I want this book to be in doctor’s offices, medical centers, neurologist’s hands.
I know I am dreaming big, but why not? What do I have to lose by following this dream? A book that sits on my own shelf collecting dust when it could be in the hands of a family or caregiver’s hands.
Please, help me along with my prayers to locate a publisher who has compassion, heart and an inner soul who wants to help spread the word of one caregiver, a sister and the journey of MSA.
I may want to add a special note here for the sake of others. I have not located a job as of yet, so I can’t afford to pay hundreds of dollars to get this published, but I will do my very best at doing what I can to help get this out. Thank-you. Please, please share this with someone you know who may have some personal contact or interest in my goal.
For my part – my sister having had MSA and her neurologist having had only 1 other case – there was no information out there on what to do for her, what would help what wouldn’t. The people I met on Facebook and in chat rooms, and your blog, were the best help and comfort I could find. I sincerely hope that you do find an outlet for Al’s story. His were unique circumstances.
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Bless you Nena for your words. My greatest reward is you telling me my blog either comforted you or helped or both. Thank-you so much. I pray that an angel and God helps me with my dream
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Dreams can come true, Terry. I cross my paws. Extra Pawkisses for Good Luck 🙂
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Keep em crossed my friend!!!! hugs and thank you
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Sending prayers and good vibes.
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Thank you so much my friend
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Tweeted Terry, that seems a little thing, but who knows! God bless!
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Thank you for helping me my friend. Hugs
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Terry, I wish I had something more to offer you than best wishes, but I have no contacts at all. Praying someone knows someone who knows someone. . . .
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I think best wishes are pretty awesome!!! Thanks
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You GO GIRL! I am so amazed at all you have done and continued to do. I believe in prayers and will be sending many your way in support of your mission. ((HUGS))
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Thank you so much dear friend. Hugs
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Go for it, and pray for it, it will happen!
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Oh I m hoping Ute, I am praying
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ready to publish?… that’s an achievement in itself…I learned by reading your blog about this terrible disease…and it became a part of me …as I watched your everyday life…with Al…I still find myself looking at COKE items and think of mailing one to Al…then, remember…
I read your book Dahlia while on Jury Duty these past two weeks…REALY-REALLY good Terry!…You do have talent!…Wishing you the best on this endeavor!
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I am happy to hear that you enjoyed my first book. I still look at coke items too and men’s clothes. It is so hard to stop after doing it for so many years. I think of Al every single day and I miss him terribly. Big hugs my friend
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Terry, I too lost my brother to MSA. The picture you posted of him reminds me of him. I hope you find the help you need to publish your book. I can’t wait to read it.
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I am sorry for your loss. I hate it that MSA keeps taking lives. Thank you for sharing with me
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