Ever since Al passed away, I have had a deep desire to reach out to others and help them. MSA, multiple system atrophy is just not any regular illness. It is rare, and it is a completely bumpy roller-coaster ride from beginning to end.
I have taught a Hospice group and I have helped several people on Facebook that have had questions. It seems the biggest question I am asked is what stage is my loved one in?
I finally decided that my desire was so strong that maybe, just maybe God was using Al’s illness for me to go further in my life. Does that make any sense? It does to me. Every thing I did, all that I saw, every fear I experienced, every question I googled and learned, I want to help others not to have to go through what caregivers live through.
I decided to test the waters, step out in faith and build me a page on Facebook. I opened it two days ago and each day I have added things to it, such as photos and videos.
It is called;
MSA Help or Just Need to Talk, Multiple System Atrophy
You can find it at the link below;
https://www.facebook.com/MSAfeelingstressed
It is a site where friends, family, and caregivers can come and just talk, have a good listener, vent or cry. I added to it today that I will come to you and speak to your community, nursing home or where ever I may be needed.
I have never done this before, but I feel led to do it. I have tried putting in so many resumes since I moved here to Kentucky. I never get anywhere. Maybe, just maybe this is the route I am supposed to walk. I ask God to help me by opening the door, if he wants me to walk through it.
Wonderful idea Terry!
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I will give it my best thanks Julie
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Inspiring
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Your comment gives me more courage to be better than yesterday , thank you
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Sounds like a good idea, and I know how passionate and knowledgable you are with this!
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I really want it to happen so time shall tell
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Terry, maybe you could consider putting a notice in your local newspaper, and the papers in surrounding towns. Maybe do a little write-up on your experience with Al and send it in as a letter to the editor. You never know.
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good idea, I have done that with looking for people to care for but not the MSA part. Thanks I will work on that and maybe something will come from it
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