Multiple System Atrophy

I became involved almost two years ago with MSA; which stands for Multiple System Atrophy. It is for this reason that I writing this post. MSA is a neurological disease that during its course shuts down every movement, the heart and lungs. In the end, there is no chance thus far of going back.

Every single day research and amazing doctors along with volunteers write, study and try new ideas to discover a cure. It seems to me that with my involvement of several Facebook MSA groups, an average of one of my dear friends passes away.

This is the circumstances today once again. It is so hard for me. First, it reminds of my dear brother Al. Second, I talk to these people on a daily basis. I try to provide comfort to families, caregivers and the spouses; and yet, it is not enough.

MSA is worse than cancer. You ask me how could that be? We know enough about cancers. A lot of the times doctors can give you an idea of how long you have. With MSA there is a time span of 5-7 years.

I know for Al the last year out of his 7 year battle with this horrible disease went quick and it was mean. Meaner than any fantasy or sci-fi movie you have ever watched. In all my years of caring for patients I have never seen anything like this.

I am asking that if any of you have a few extra pieces of change please help find a cure for this nasty snake of an illness. It is so easy to do. Go to the link I will provide and click on donate. Pretty simple huh. If you question why should I do this? Do it in the memory of my brother, Al Miller, who will be gone from my eyes one year March 24th.

 

https://www.multiplesystematrophy.org/fundraising/donation

How’s Your Weather?

Good afternoon. Today in Russellville, Kentucky it is not bad in temps right now. It is about 38. It is supposed to drop to freezing and below for the next 24-48 hours here. There is snow expected. For our area we are predicting a few inches.

It is windy and gray. I decided to take advantage of the warmer weather now and go get some groceries. When I got to the grocery store it was packed to the max. I heard so many chat about the big storm coming.

I know it is little compared to up north where I am from. A few inches? That is nothing, but I understand it here. We have only had about an inch total this winter so a few inches sets the town up for shut-down.

I got four comments on how much someone liked my purse. Every where I go a person makes a comment. It is a fact, if you know me, I like bling, the more the better. I decided to take a photo of it and place it here. It feels good to hear the words. Maybe sometimes I do have good taste.

After leaving the grocery store I stopped at the video store. If we are going to be indoors for a few days I will be lonely but have food and warmth and of course movies to watch. Instead of getting new releases that are good for over-night; I chose five-night movie rentals. Surely the weather will be back to normal by next Thursday?

My choices were movies I have previously seen and enjoyed. Five movies, five dollars, five nights. What a deal. I chose;

1. Sister’s Keeper

2.La Bamba

3. Lean on Me

4. First Wives Club

5. For Richer or Poorer

6. A Few Good Men

I forgot I had a credit on my account, so I got six instead of five.

Well, folks, what is it doing in your area? Snowing, cold, blowing winds? Let me know and I will keep you updated on our weather here in Kentucky

A photo of my purse.