I became involved almost two years ago with MSA; which stands for Multiple System Atrophy. It is for this reason that I writing this post. MSA is a neurological disease that during its course shuts down every movement, the heart and lungs. In the end, there is no chance thus far of going back.
Every single day research and amazing doctors along with volunteers write, study and try new ideas to discover a cure. It seems to me that with my involvement of several Facebook MSA groups, an average of one of my dear friends passes away.
This is the circumstances today once again. It is so hard for me. First, it reminds of my dear brother Al. Second, I talk to these people on a daily basis. I try to provide comfort to families, caregivers and the spouses; and yet, it is not enough.
MSA is worse than cancer. You ask me how could that be? We know enough about cancers. A lot of the times doctors can give you an idea of how long you have. With MSA there is a time span of 5-7 years.
I know for Al the last year out of his 7 year battle with this horrible disease went quick and it was mean. Meaner than any fantasy or sci-fi movie you have ever watched. In all my years of caring for patients I have never seen anything like this.
I am asking that if any of you have a few extra pieces of change please help find a cure for this nasty snake of an illness. It is so easy to do. Go to the link I will provide and click on donate. Pretty simple huh. If you question why should I do this? Do it in the memory of my brother, Al Miller, who will be gone from my eyes one year March 24th.