But some days I wish I had the look of a person with a disability. I get looks sometimes when I say I can’t do something when others ask. I am living with the disability so I don’t question myself, but it makes me feel odd when others question me as to why I can’t or give me that look.
I look perfectly fine on the outside but on the inside it’s a different look. For example, yesterday, I felt weak. I was having internal tremors from my trunk down through my personal area and down my legs. It takes it out of me. It isn’t that painful as it is more of an annoyance and bringing on weakness. It feels like I ran a five mile race. Yesterday was the first day that it lasted for hours, so every move I made was like moving cemented legs.
I can’t walk long distances without my walker or a cart and when I do walk it isn’t long before I feel like I am going to pass out. This coming week I am going to a specialist for a Tilt Table test. Hopefully, I will find answers to this issue.
I really don’t want to look like I am disabled but people would believe me when I told them no or I am too weak today.
Thanks for letting me vent.
Happy Mother’s day to all of you moms
Who I am 
I can relate. I pray all checks out well. Happy Moms day. Blessings.
LikeLiked by 1 person
Thank you for understanding because most don’t!! Hugs
LikeLike
Unless you know someone who has a “invisible” illness, it’s really hard to understand. I’m sorry that someone might not have understood it when you had to admit your limits. Huggerz. Have a GREAT Mother’s Day!
LikeLiked by 1 person
Thanks. It happens so many times with people who know me. Maybe they just forget???
LikeLiked by 1 person
people think sometimes I am drunk because of the way I walk due to Ataxia. I wish I had a clever come back
LikeLike
This comes down to people always judging and what is not visible is not there. Shame, still kind and helpful people don’t do that. Wishing you a nice Mother’s Day!
LikeLiked by 1 person
People do love to judge!! Thank you
LikeLiked by 1 person
People who are able to move around easily have no idea what it feels like to have a condition that prevents you f rom doing the same. If you don’t look “sick”, then they have no thought that something might just be wrong in others. Like you, I don’t particularly look “disabled” except for my limp which is less or more noticeable according to what I have been doing physically. But I can’t stand for long periods of time without increased pain (which no one can see) and also weakness. I understand what you are experiencing. Fortunately no one has ever made rude comments to me or looked strangely at me, but I know people do these things. But thankfully there are kind people out there who are compassionate. God bless you and have a great Mother’s Day.
LikeLiked by 1 person
The biggest thing I get is looks of laughing and questions about me being drunk. I sure wish I had a quick come back remark but usually I am too embarrassed and walk away
LikeLike
I understand where you coming from.Same there,they tend to stare me down too. People can be so hurtful and rude. I posted a Happy Mother’s Day to everyone yesterday , Don’t know if you saw it or not. God bless you my friend,keeping you in my thoughts and prayers as I always do. Hope this Tilt table test will help in some way to be able to help resolve your issues with weakness etc. Goodness they’re going to turn you on your head, WOW.
LikeLiked by 1 person
I have read that some people pass out from their blood pressure dropping on this tilt table test. I hope I do not. Happy Mother’s day to you too my friend. Thank you for praying. Big hugs
LikeLike