A Work in Progress


It wasn’t long ago that there was no worry or pain nor hurt. Do you remember that era? I do, it was when I was a young girl. Riding my bike, seeing how fast I could peddle, jumping rope, racing against my own legs. Swinging on the school swings. I can still hear my voice as I laughed full of freedom. Let’s see how high we can go!

Realizing when we got home from school our parents would be there or an entrusted sitter. We didn’t wonder if there would be a snack to eat, we knew it. We didn’t go straight to our room and throw our bodies on the bed and weep for what was to come.

I don’t think I actually felt a deep pain until my first break-up with my boyfriend in high school. I really believe for me, this is when I began to question who I was. Oh, I didn’t question the deep brain thoughts, I questioned my hair style, my clothes and probably my weight. I fretted about what the kids in school would say when they learned that WE were no longer going steady. Would I be able to handle seeing him without wanting to die?

Oh to have some of the simplistic life today. I still ponder on life but in different ways. I now no longer worry what people say about my clothes, because the major underside is comfort. I need comfort to be able to function from my gut problems of daily swelling. I don’t worry about make-up anymore because I rarely go out. I do think about how I look when my daughter comes to visit. I guess I never want her to see through me and guess my pain, so it is easier to play dress-up.

Today, I wake up and immediately thank God for a new day. I tell him my concerns and I pray for my children and their relationships and I pray for our President and our country. I ask him for strength to get through the day and I ask him for his healing.

Today, I still try to think of little things I can do or say to others. I believe we all, more than ever, need to know we are loved and needed. I believe that one smile is worth feeling alone. I firmly believe in Peace today. Peace within myself. Realizing that I made a ton of mistakes growing up and raising my family and peace that I can not go back and change one thing.

I want to know when that day arrives that Jesus lifts me up, I will have forgiven myself and that I am going to a beautiful home. When I look back, I smile at myself, at the progress I have made. I am far from being where I need to be, but I am making progress. I am what I would consider, a work in progress.

There is no Difference


I am generally not one who picks at things but I can’t help but notice the media, and I won’t mention any particular one, but in general, we do get our news from the internet, TV news, or radio, can cause an uproar.

I am beginning to feel like someone wants us to be upset, to notice the negative around us. I notice we are not one people anymore, oh, we really are but someone wants us to be divided.

On the news, I hear statements like,” A young, black lady.” Why? Why do they say that? Isn’t the story what we are really interested in and not the color of the skin? Would it make the story any different if the color of the skin was purple polka dots? Why not just simply say, “A young lady.”

Are colored people the only ones who riot? Are whites the only ones who are of wealth?

I just don’t like it. God created us all equal in his eyes.

God’s word is very clear in telling us that all men are created equal and every single person can be a child of God, receiving the full inheritance of heaven. We can look toward the Bible to learn how to love and serve everyone no matter what their age, color, or ethnicity, gender or nationality.

I just wish our countries would work on stop the dividing instead of becoming divided because it doesn’t have to be this way.

The View


Well, within minutes, we exchange one year for another. People get real pumped about the new year coming in. I think more than usual this year because of the unwelcome things that entered into our lives.

It wasn’t just our close ones that upset or worried us. We had to hear and read about our government and our hospitals. We learned about the common families that lives were turned upside down.

We heard of more hunger, that was not outside our own country. We learned to go back to some of our basic skills that were taught to us while young. We pulled together in many areas and used our hearts and minds and thought of various ways to help our neighbors.

This last sentence warms my heart. Isn’t that what we were placed on this blue marble for in the beginning? John 15:12: This is my commandment, that ye love one another, even as I have loved you.

It is when we remember what we learned as children, that the world will finally begin to bring balance together. No one will look different in color, race or gender. We will look at each other as our neighbor.

I pray that we see more calm and dedication in the year 2021.

Happy New Year, friends and readers.

In the Blink of an Eye


A beautiful home, red brick, pretty painted windows, lots of shrubs. This is where she lived. A woman of age, a lady of many stories, a mother and wife. This is where Anna lived, here with her son and his family.

It was a joy to come here five days a week, to care for her. We would watch television together. I would fix her dinner and give her her nightly medications. When I saw the second yawn, I would ask her if she was ready to start preparing for bed and she would give me that delicate smile and nod her head yes.

This was pretty much our routine nightly. The only real change would be when her son and family were all home together and when I would walk in, I was usually invited to sit and enjoy supper with them. I always accepted.

It was during these precious moments that I was given the opportunity to get to know about this family and learn more about the history of the lady I was caring for. I really did enjoy these meals and family time together. After weeks went by, I actually felt a part of this entire family.

One of the biggest topics that were spent over dinner was about flying. Father loved everything about flying. In fact, the entire time I cared for his mother, he was taking flying lessons. He would tell us all about the feelings and rushes that he had while in the plane.

The family talked about the adventures they would take after dad got his pilot license. The three kids would always jump up from their seats and ask when they would get a turn. I could see the love in all of their eyes as they looked excitedly towards the next months.

There came a time when it all came to end, as life usually does give us changes we don’t like. The lady I cared for passed away. I was very sad and also sad that I didn’t get to intertwine with the family any longer. I went to the funeral of course and I kept in touch with the family, but you know how it works, times ticks by and life moves on.

I hadn’t heard from these nice people in sometime and then on New Year’s eve, I was glancing through the news on the internet and there it was. There was an accident, a plane accident. Two people died. It was the pilot with the new license and his wife. They had been flying their first trip and hit a low area. They were instantly killed.

My heart broke in two and when I think of them today, my heart still breaks. I told you this true story because I want you to remember this on New Year’s eve, when you are believing your thinking is good enough after only a few drinks to drive. Don’t, don’t do it, don’t drink and drive. It only takes one blink of an eye and life can change everything, as you knew it.

There is Only today to Live


Wow, where did the year go? I can’t believe this is the last month of the year and also Christmas. What does the year say for you? How do you feel about Christmas?

For me, although I worried about remaining safe and my family not getting the virus; I am blessed today, as I am not one of those in the over crowded hospitals. I think what helps me follow the virus rules is, I don’t want to lie in a cold, hard bed all alone, and maybe die alone with my family and friends not being able to hold my hand.

I have always been afraid of being alone and it is quite actually silly because I am not alone at all. I never have been since I chose to let God live in my life and so I am not one of those anymore all excited about the presents and blitz, although I do love the soft lights of Christmas and the spirit of people’s hearts.

I am thankful that I made it to this day, to this month and to this year. I am sixty-six and I don’t know how many opportunities I am going to be given, so for me I will say thank-you each day I live.

Today, thirteen years ago, my hero of my life was taken to heaven. My daddy, how I still find some days to be as close as that day, is still being missed by me as much as the first day he left. Hand in hand, I heard him take his last breath. I love and miss you Daddy.

A Cheap Shower Curtain Says it All


The strangest things pop in my head at times. I blame this on the fact that I am a constant thinker. I actually was in the ladies’ room and was sitting on the throne. I looked at the shower curtain as I probably do most times, but saw things I hadn’t seen before.

I bought this shower curtain three weeks ago. It is in the blue hues and is checkered. It isn’t anything fancy and was a product of WalMart. Suddenly I took notice of the inside of the checker pattern. There is scribbles of a gold enhancer so it is supposed to look like water trickling down the curtain but I saw something different. I saw crosses. Yes, there was a cross in each square, all in gold. I had no problem detailing each one and as you looked outside of the checks, you could see straight lines along with wrinkles from how the curtain rest against the tub.

I was putting a puzzle together. I saw my life as I walked down the straight and narrow, sometimes running into bumps but, always ahead, I could see the gold cross. I knew that I was not alone on this travel called life. God is always with me and beside me. He is right there for you and for me. He is only waiting for us to seek him out.

Isn’t that good to know? With the changes in our world today, that aren’t all good, we can count on not being alone. This brings me inner peace. With this pandemic, it is easy to feel very alone, but we aren’t. When you can see the proof in a cheap, WalMart shower curtain, you know that God is real. Hugs everyone.

Photo taken by me.

It’s All in the Day


Tomorrow, I go to my Neurologist for my check-up. I do this every six months. I will be discussing with him; my new shoes made for my feet and my Ataxia and Dystonia.

a·tax·i·a
/əˈtaksēə,āˈtaksēə/
noun

MEDICINE
  1. the loss of full control of bodily movements.

 

dys·to·ni·a
/dəˈstōnēə/
noun

MEDICINE
  1. a state of abnormal muscle tone resulting in muscular spasm and abnormal posture, typically due to neurological disease or a side effect of drug therapy.

 

I am also going to talk about the idea of me having a special type of Ataxia, which is; Sensory Ataxia.

Sensory ataxia

This is ataxia due to loss of proprioception. Proprioception is the sense of the relative position of neighboring parts of the body. It is a sense that indicates whether the body is moving with the required effort and gives feedback on the position of body parts relative to each other.

A patient with sensory ataxia typically has an unsteady stomping gait, with the heel striking hard as it touches the ground with each step. Postural instability becomes worse in poorly lit environments. If a doctor asks the patient to stand with eyes closed and feet together, their instability will worsen. This is because loss of proprioception makes the patient much more reliant on visual data.

The patient may find it hard to perform smoothly coordinated voluntary movements with the limbs, trunk, pharynx, larynx, and eyes.

The reason being is; I see advancement on when I close my eyes. I just can’t do it anymore without falling. I can’t look up nor can I look down; I fall within seconds. I know there isn’t anything anyone can do but I want to see if he thinks this may be happening to me.

My new shoes were taken back and the insert the company had provided for me to have better balance was replaced with a thinner insert. I don’t have the better balance; but the shoes fit better now.

Sometimes I ask myself why do I continue to make appointments with my Neurologist. I already know they can’t help me in so many ways but I keep them for records. I am on someone’s file for what is happening to me and it also helps me keep tabs on my advancement of this thing.

The Dystonia is what also affects my walking. The new shoes don’t seem to help that part. This is where my toes curl under anytime they feel like it.

I’m dealing with all this along with my Parkinsonism.

Parkinsonism is a clinical syndrome characterized by tremor, bradykinesia, rigidity, and postural instability. It is found in Parkinson’s disease (PD)—after which it is named—dementia with Lewy bodies (DLB), and Parkinson’s disease dementia (PDD), and many other conditions.

I’m dealing with it all because I know I could be so much worse off. Taking care of so many patients in my life time; things could be a whole different story for me.

And how is your week going?

I Had to Smile


I wrote yesterday about my chaotic week. Full of hurt and loss from loved ones. After repeating to myself over and over, See through your eyes Lord, Hear through your ears, Love through your heart; I am more calm this morning.

I can not control how I am feeling in my heart from people’s actions but I can control how I let it affect me. There is nothing worse than being un-friended by a loved one or knowing there is an issue but the other person won’t allow you to know what it is.

What can I do about it? Pray, give it to God, let him deal with it. He knows how to fix things. The other thing I do when I get to bombarded by the “stuff” in this world is look for something that makes just me  happy, and this is what I did.

I went to my favorite second-hand store. I looked at everything, knowing I had a budget I had to stick to. I saw this piece that I had been wanting for about a month. Every time I went inside this store, there it sat.

Yesterday, I decided; this would make me smile. This would make me feel good every time I went into my bathroom, which is where I placed my new piece. Here is a photo of it and yes, I am still smiling over it.

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It is about four foot tall. It is slender which fits my bathroom perfect. I filled it with toilet paper and soaps. I love it. Of course I love old things. What do you think? Do you like it? Do you ever buy yourself treats when life gets you down? Does it help when you do?

Filling the Gap


Paul spent most days in a routine. He began by waking promptly at five in the morning. He read a chapter in his Bible then got dressed. In the kitchen he started his coffee maker and then stared out the small window while listening to the noise of the coffee perking and inviting memories to help set his day.

After eating a bowl of oatmeal with butter and honey, he tidied up the kitchen, grabbed his jacket and hat, then headed for the garage. He guided his car to the three blocks ahead, turned down the little, gravel path and shut the car off. There, he sat for however long it took to make him feel the comfort he needed.

His wife, Anna, had been buried here seven months ago this day. She had passed a way from a grueling disease. It was a long battle and they both had not won. It was a neurological disease called Multiple System Atrophy.

Prior to this disease, their map of life had been drawn by thick, dark lines. Travels to Arizona and New Mexico had been penciled in. Sights of a large cruise ship sailing along the waters was in the making.

Then, out of the blue, Anna started running into things. Her fingers began to have a tremor in them. It seemed, as Paul remembered back, that each few months, a new symptom arrived. He could remember her first fall, her first choking, the day she got weak while tending to her flowers. Everything was crystal clear now but back then it was a train traveling fast on the rails; a real blur.

“I miss you so much Anna. Life is definitely not the same. I now no longer dream of tomorrow. In fact, I tore up that map.” Paul waited, as if for a response from Anna on what he had done. Feeling nothing, he got out of  his car and stood in front of the flowers he had planted.  When the time felt right, he got back in his car and headed home.

Once home he let the noise of the television and the chimes of his clock keep him company. In the midst of this one afternoon, a knock at the door interrupted his thoughts. Opening the door, he saw his friend  Gene standing before him. He let him in and they both sat down in the living room.

” I haven’t been able to stop thinking about you Paul. I figured I would just come on by and pay you a visit. How are you doing my friend?”

” Oh, I’m fine you know. No new aches or pains. God let me breathe in a new day. I went down and visited Anna. I told her how much I miss her.”

“That’s exactly one of the reasons I stopped by Paul. There is this woman at church that I think could use your help.”

“Oh”, Paul said as he laughed,”I’m not interested in any sort of relationship. It just hasn’t been long enough. My mind is always on my wife, Anna.”

“Oh, I didn’t mean that kind of relationship”, he said as he slapped his hand on his pants with laughter. “I mean, she is hurting. She’s got some sort of sickness. She’s been feeling all alone. She says no one understands how she feels. I figured you are a sensitive man. Maybe you could just be a good listener. This would be a good opportunity to get yourself a new friend; something to add to your day.”

Paul didn’t say anything and Gene didn’t push the topic. Instead, they turned to the weather and what the week hoped to bring. After about an hour, Gene said it was time to go. Paul walked him to the door and they patted each other on the back. “See you in church Sunday.” Paul nodded.

The days went by and Sunday arrived. Paul got his Sunday clothes on, grabbed his Bible and headed to church. He smiled and shook hands with the greeters. He spoke about nothing important to others. He headed down the aisle to his seat he sat in each Sunday. There sat his friend Gene. Beside him was his wife, Gloria and beside her was a woman sitting in a wheelchair.

She looked at him and he at her. He nodded and sat down, thumbing through the church bulletin. The choir began singing and Paul sat and thought about what was being said. He listened to the sermon which was on people helping people.

Afterwards, there was a church dinner. This church had a carry-in every couple of weeks. It was a nice time shared among all. It gave purpose to the day and week ahead. Paul found himself sitting between this lady in the wheelchair, Gloria and Gene sitting on the opposite side of the table.

Talk was light. Smiles were shared. Gene introduced the stranger. Star was her name. Paul found himself watching her as she ate. She dropped food at times. It looked like she was struggling a little with swallowing. He wondered what condition she had that made her do that. It threw him back to his memories of when his dear wife did that too.

After the dinner was done, people either helped clean-up or headed out the church doors. For a brief time, Paul and Star were the only ones left sitting at the table. They exchanged words that would not be remembered later.  Soon the silence could be heard. Everyone had left. Gene and Gloria got their coats on and the two helped Star with her coat on. They helped her to their car and Paul followed, watching them help get Star situated.

Weeks turned into months and it seemed every Sunday a new routine had been formed. Paul sat with Star and the two opened up more and in time they became good friends. Paul would share his memories of his wife and Star would share about her life and medical condition.

One Sunday, Paul had been invited over to Gene and Gloria’s house for dinner. When he arrived and being let in; he noticed immediately that Star had been invited also. Paul didn’t get upset. Instead, he found himself sitting next to her on the couch. The two chatted while dinner was being finished. In face, the two chatted so much, Gene couldn’t help but smile to himself, knowing he had made a good decision on introducing the two.

The following Monday, after Paul returned from his visit to see his wife, the phone was ringing as he walked through the door. He answered it to learn that Star had fallen and was in the hospital.

He felt a tug at his heart that he didn’t expect to feel. He thanked the caller and went about fixing himself his lunch. This consisted of some left-over baked chicken and a half of a baked potato he hadn’t eaten before.

He tidied up and decided to go to the hospital to see Star. He learned she had fallen out of her wheelchair while trying to reach for something and this fall had caused a broken hip. After the completion of the ER, Star was transferred to a room upstairs for a few days of observation and to make sure she was healing properly.

After that time went by, she was transferred to a local nursing home for rehabilitation. Paul learned she would be their approximately six weeks. Now, after his usual routine of daily living, he also added the daily visits to see Star.

He brought her little trinkets that sometimes included her favorite candy, or a new book to read. He stayed most days until the supper hour. He found himself wishing he didn’t have to leave. Star felt the same way. She couldn’t hide the fact  from herself that Paul brought her friendship which included a feeling of peace and a lingering to have the next day’s visit arrive.

There seemed to be a lighter step in Paul’s life. He told himself over and over he didn’t love Star. He could love no other woman except his Anna, but yet, this new friend, stirred something within him.

After a couple of weeks went by, Paul made his usual visit. He entered the empty room. Where was Star, he wondered. He walked out to the nurse’s station to learn that Star had been having a temperature and her lungs seemed congested. They had her transferred to the hospital for further investigation. Paul thanked the nurse for the information.

He took the one rose he had brought with him and laid it gently on the pillow of the made bed of Stars. He left the building and headed for the hospital. When he entered, he asked what room number she was in. The receptionist told him and he took the elevators to the fourth floor.

There was Star. She was laying in a bed. IV’s were hooked up to  her. He saw two of them. A monitor was keeping track of her blood pressure and heart rate. Star wasn’t talking. She was so quiet it scared Paul.

A nurse came in and checked on Star. She smiled at Paul but said nothing. Paul pulled up a chair close to Star. He watched her sleeping. His thoughts turned to prayers to the almighty God. He felt a tear drip on his folded hands. He knew in his heart that he had come to know and love this woman.

He started whispering to Star. He told her how he felt about her. ” I don’t know when it happened dear Star, but some where along the way, I grew feelings for you. I hope you can hear me. I just have to tell you this because I want to know if you feel anything for me other than friendship.”

He held her hand but nothing came out of her mouth. He sat there for hours, waiting for her to open her eyes. Suddenly her eyes twitched and she opened them. She looked at him but said nothing. Instead, she squeezed his hand. He took this as she was answering his question, that yes, she felt something for  him too.

Paul squeezed her hand back and then kissed her hand. He beamed and the two shared an emotion that would never be felt again. Paul finally decided he had to leave. His watch told him it was time for supper. He leaned in and kissed her forehead and whispered that he would be back the next day. Star closed her eyes and went back to sleep.

Paul stopped at a small restaurant that served home-cooking. He ordered the special, meatloaf dinner. In this was a thick piece of meatloaf which included mashed potatoes and green beans. It was way too much food and he requested a take-home box for the leftovers.

When he arrived home, he turned the television on. He tuned in to some game show. He listened to it but kept thinking about what would Anna be thinking about Star. He fell asleep and was woken to the sound of the phone.

“Paul, I’m going to stop by in a few minutes. Get your coat and hat and be ready to go. There’s been a change at the hospital with Star. You and I are going to go visit her.” Paul hung up and got ready.

In no time at all they went through the double doors of the hospital and were standing in the doorway of Star’s room. Two nurses were in there. They saw Paul and Gene and hung their heads in silence. They took the white sheet and covered Star’s body then walked up to her friends and patted them on the back. “I’m sorry gentlemen. She just couldn’t fight it anymore. The infection in her lungs just got too big.” The nurses gave them a hug and walked out of the room.

Paul and Gene walked over to the bed. Paul reached down and felt Star’s hand through the sheet. He held it until Gene whispered ,”It’s time to go I think.” Paul let go of her hand and kissed his palm and transferred it to  her forehead. The two turned and left in silence, Gene’s arm around Paul’s shoulder, patting him, like everything is going to be okay.

 

Will everything be okay? Is death something that we can heal from?

Is it possible to love twice in a life time? 

Life sure doesn’t seem fair at times does it?

God placed us on this earth to learn and feel love towards others. For those of us who have experienced these feelings, we somehow manage to go on with our lives, but the void left behind never fully closes.

This story was written by;

Terry Shepherd

02/21/2019

Are You Ready Too?


It’s been a moving forward but slow last week. I pulled a muscle in my lower back. I don’t even know when I did it. Years ago when my daughter was born, which was in Germany, the doctors used the Spinal block for their drug of choice to deliver a baby.

Today, forty some years later, I can’t stand to have that spot touched. I’m sure Mr. Arthur has been settling in for a long-term relationship with me. I babied my back. I used OTC medications and my rice bag. I laid in bed quite a bit.

Yesterday, was the first day I could actually go through my day with only ten percent pain. It feels good to be back to my usual self. I am hoping that this week I will also receive a phone call stating my shoes will be ready to pick up.

With my Ataxia, it is  hard to stand steady and I will try anything that may help my feet. I hate that feeling that I am going to fall or the weeble wobble that my body does.

This week I will return to my volunteer job and there are doctor appointments and government meetings. I pray all will result in positive news.

The skies are something I wish I could change. The gray and brown colors are mainly what I see daily. Spring is coming though for us here in Indiana. Robins and Geese have been seen and these are good signs. Did  you know that Robins will not arrive back here in the mid west unless they are sure they won’t have to go a day without food? They are very smart birds.

I am so looking forward to greener grass, the smell of fresh air, the birds singing and watching the first flowers pop-up above grass levels. What about you? Are you ready for Spring?spring-season