I Am Beginning


I went to see Al today, but sadly spent so much time in the office, arguing over his monthly bill,  so I didn’t see that much of him before he retired for his nap. I am going to go and pick him up tomorrow and take him to lunch. He also wants to go to K-Mart, because he saw a commercial stating half-price on hot wheel cars. I have a coupon for bogos, one at Arby’s and the other at Dairy Queen for blizzards, so am hoping for a nice afternoon.

I started buying  my collection of  items needed for Christmas dinner, and got some other things I needed for the make it part of our Christmas. It was a peaceful day. I find these days very nice. I am slowly starting to heal inside. I can see Al and leave now with out crying.

I am beginning to enjoy some time away from the house now. I plan on running errands after seeing Al, and then hibernate inside the house on the days I don’t see him. Time heals, everyone says, and I guess I am living proof of it.

Al is still very quiet. I notice more confusion though. It is sporadic. It never stabilizes so that I can see a routine. I had bought him a Christmas T-shirt. In fact, I bought him two. I marked his name on them, and hung them up in his closet two days ago. I was wearing a duplicate of one I bought him, and he stated, ” I really like that shirt sis.” I said ” Well why don’t you wear yours? I hung it up in your closet.” He replied, ” I haven’t seen it.”

I went to his closet and went through it twice, no shirt. I went to the laundry area and asked the aid if she had it down there. I pointed to my own I was wearing, and said, ” It looks just like this.” She said, ” What does it look like”? I probably had my duh look on then and then she laughed and went to look for it, but came back empty-handed.

I don’t know what to do . Brand new shirt M.I.A. It upsets me because not only did it cost, but he loved the shirt.

When I got home, I could hear this loud chatter like someone was very upset. I got my bags inside and took my camera back out. This is where the chatter was coming from.

squirrelnestnest 2

Delicate Situation


How do I tell a story without being gross, or making you want to run for the bathroom? I am not sure, but I will do my best to say each phrase delicately.

Al is my brother, in case you new blogger followers do not realize it. Al has Parkinson’s and is mildly mentally challenged. He is also a heart patient. I have been caring for him for almost five years.

In the second year of caring for him, he was diagnosed with Parkinson’s. He has gone through many changes in these two years, the latest being urinating in his undies. Here lies the issue of yesterday and today.

I go to a local pharmacy that takes Medicare, and we purchase a gadget called a Texas Catheter. It is very similar to a regular catheter, except it has a condom like look and feel that attaches to the outer part of a man’s private area, instead of a tubing being ran inside. There is a bag that attaches to the leg and a tubing attached to that to let the drippings flow from Al to the bag.

Now, I am sure that most of us are grown ups here and have seen the male specimen. We know that it can do tricks, by hanging low or hanging high. I say this with much blushing!!!

Now picture this, 2012, as Ma would say on The Golden Girls. Bathroom, Al sitting down on the shower chair, sister, me, sitting down across from him on another chair. Cuts open the cover for the bag and the cover for the attachments. I look at poor Al’s eyes and tell him I am soooooooooo sorry, that I have to be with him in such a delicate situation like this, and I will hurry as fast as I can, and if I hurt him, please say ouch!

I put my surgeon’s gloves on and I look at Al’s body part, and ask myself how am I going to get this tight-fitting rubber piece over something that is looking down at the floor and not standing at attention.

I think, tick tick tick tick, and I tell Al, well bud, here goes nothing, but I did not mean actually nothing, because by the tenth time of trying to get this stupid thing on, and it flipping back at me and reminding me it was not going to listen, I had probably made a naked spot on his skin where once there was hair.

The sweat was pouring off my brow and I could feel Alvin holding his breath. It was like doing a delicate operation with no knife. FINALLY, I get the little gadget in place. I attach it to the bag on the leg, and I have him stand up so I can see how it fits when he moves and then sits. We go through these motions a couple of times.

I am disappointed that the tubing is not very long, not giving Al much space, but it was all in place, so I quit. I wet a wash rag and wiped Al’s arms and back down where he had sweated from fear of losing his man hood, then peeled off my gloves, tossing them in the trash, and go to my own bathroom and cool myself off with a shower.

Now all this happened yesterday, before he fell in the early evening, so when he gets up from his nap, he tells me it rolled off. I said what rolled off, and he points to his umm,  his personal area, and says, that! I thought, oh my gosh, it was so darn tight, that his whole thing fell off. I was castrating the poor guy and didn’t even know it! He says that he placed the bag in the trash. I said alright, I will call the pharmacy and tell them this is a disaster for the two of us, and ask if they have any suggestions.

After the fall and checking him out, I go to start supper and guess what is lying in the kitchen sink, THE BAG. Oh how sick! It has been in my sink, quick, get the bleach and a new pair of rubber gloves!!!

I take care of all that and the area is now all sterilized, ready for supper preparation, but I have now lost a bit of my appetite. I go to the computer for a bit, so I can forget the memory of my poor sink, and then later go back to do my duties. I did a load of laundry after supper, and discovered that each pair of undies and shorts were at different levels of wetness, so when the timing was right, I had to tell Al that he would have to wear the depend briefs from now on, and he didn’t say too much.

This morning, I called the Pharmacy and explained the issues, and she said she had longer tubing, that would help Al to move better, therefore the little attachment would stay in place.

To bribe Al to get him out of the house, because I had told him prior, that we would not be going anywhere today, and it is hard to change what was once said, so I knew that Arby’s was having a deal today on their new sandwiches, Turkey sandwiches. A great deal, free! Also, Dairy Queen was having a buy one blizzard get another for ninety-nine cents, so I ask him if he wanted to do these two things, plus ran back over to the Pharmacy. He jumped at the opportunity for blizzards, well not jumped, but did say yes.

We go and get the sandwiches, then go to the Dairy Queen and got the blizzards and then went to the park and ate in the shade on a bench. He is a slow eater compared to me, so after I was done I snapped these photos. After Al was all done, we went to the Pharmacy and picked up the longer tubing, and then I remembered that he needed a new electric razor, so I also stopped at the drugstore and bought one for him.

We go back home and we head to the bathroom. I am explaining to him that this will work much better with this new longer tubing, and since I had one day’s practice with the attachment going on correctly, this would be a breeze today.

Soft tears started flowing from his eyes, and he told me he felt like a little kid. I said that I understood, which I really did, but this old disease was trying to pull one over on us and we had to stay ahead of it.

He took his clothing off, while I put my doctor gloves on and I once again asked myself how was I going to get this on something that was not looking up.

It was no easier for him or me than it was yesterday. He was crying, and I was sweating tears. After several attempts and no progress in works, and no extra hands to help me, and having pulled the last hair I could get by with without being hit, I gave up. I told Al this is the pits, we can not make it work, and I am not going to have you suffer for this, when the bag of briefs was setting right beside us. He shook his head, and he, himself, yanked that nasty rubbery piece off of himself, and he threw it in the trash. I put all the clean items back in the bag that it came from at the store, so now I have all these little gadgets lying here that can’t be taken back. Texas Catheters anyone?? LOL

Our Day, My Time


Beautiful day, perfect temperatures, plenty of sun. What more could you ask for, maybe free time? fun time? laughter? chatter?

Since it was so beautiful, I took my brother to an antique store a little ways out-of-town. I found one shaker that I purchased, and he bought each of the three items that had to do with coca cola. After that store, I dropped in on a garage sale that was going on. Al didn’t want to get out and look, because it didn’t have anything to do with coca cola, but I ignored his sour face and I went and browsed anyways. He stayed in the car. After leaving there, I took him to lunch and then went and picked up medications at the pharmacy. He did pretty well for this trip. Tired, run down and wore out from his walking in the one store, we came home.

He napped, I petted the cat and then she and I napped. Afterwards, when all three of us were up, I asked him if he wanted to go to Arby’s for supper, and he said yes, but when he found out I had different plans to not eat in the restaurant, and instead go to the park and enjoy God’s beauty and people watching with our drive thru meal, he wasn’t happy anymore.

Very seldom, do I get my own way, but thanks to two very close friends, I am learning that I count. I should get my own way, and I have to acknowledge he can be a grown up spoiled baby. I was determined to have my time, my day also. I gave him his earlier, now it was my turn.

He sulked and looked at no one. He let a few tears pass. He complained about body aches, and all this time, I am eating my supper, and taking photos. When I had felt that I had nothing new to aim and shoot at, I asked him if he was ready to go. The whole time we were there, he sat like a bump on a log, and it made me furious, that he could think of no one but himself, but I ignored the most part and made the most out of the time I was taking.

Here are some photos that I took.