The Gift


As you all know because I have crammed it down your throats yesterday, today is National Multiple System Atrophy. There have been so many comments on my Face Book page that I haven’t been able to blog. Believe me I am not complaining. People have lit hundreds of candles in his name. Some have donated in his name. Others have worn purple as I still am today.

I was going through my comments and found this precious gift for my brother and I wanted to share with all of you. None of you have met my brother, but I believe in my heart you know him very well.

Dianne Cogar I see that man Al use to be
There in his eyes still strong and free

Though his heart yearns for better days
He knows deep down this is no phase

He fights through tears, through aches, and pain
And hides them well as his strength wanes

He knows too well what lies ahead
Though it is certain he has no dread

For in his heart I’m sure he knows
That as time passes his purpose grows

For from his experience, his loss and win
Those in the future will profit in

And in Al’s name there will come a time
When his legacy will be the sign

That those like him will face less dread
For answers will reach them just ahead

And in their hearts will always be
The man who brought the world to see

For Al’s a fighter, a leader, and more
A man with purpose we all adore

Without a doubt his heart stays sure
One day they’ll find the perfect cure

 

Here is the correct and easy route to the M.S.A. page if you want to light a candle for Al today.

http://www.msaawareness.org/

 

purple candles

Dedicated To My Friend Dianne Cogar


This past week I have been reading more of Dianne’s  poetry than ever before. Why, you ask? Because she writes about life. She writes about people. She writes from her heart and soul the same as I.

I have been lucky enough to have chatted with her over the phone and I am glad that I can call her one of my friends. She knows that I care for Al. She has also done this in her own family, been the head caregiver. She along with anyone who has taken care of elderly, disabled, or anything that others would consider out of the normal, know how tedious and    butterflies 2tiring this job can be.

She also realized as you do that I pretty much go it alone. The Hospice number is always at hand for me, and I greatly appreciate this as I am treading some new waters I have not waded in before.

I stress over things that haven’t happened and you can call me one silly worry wart. I do because of caring for my brother and my father. I can’t  help but  wonder what will happen to me. I know I have said this before, but it weighs on my mind. No one wants to lose their memory. No one wants to become ill.

No one wants to end up as  a stranger to their family. No one wants to die alone. Dianne has been writing poetry for years and this past week she has touched base on the caring for parents.

I was rummaging through U Tube waiting to give my brother his medications and bed time snack when I came across this video. It ripped at my heart as I could relate in so many patients I have cared for.

I don’t care how young you are. Some day you are going to forget things. You are going to wrinkle. You are going to get old no matter how much you exercise or  pay to look young. And I can promise you that one day, you will die.

I guess what I am getting at is- take a moment. Look around in your busy life. Do you have grandparents that are lonely? Do you have an aunt or uncle, brother or sister who is disabled? Do you know someone in your corner of life that is all alone.

My saying I have had for 23 years as a caregiver is “ treat everyone like you want to be treated when you become old. Don’t forget the elderly and the disabled.”

Take a look at this video. It is in a foreign language but read the bottom, it is in English. If you have seen it before, watch it again. If you have never seen it, watch it and then take mental notes.

Thank-you Dianne Cogar so much for coming into my life at the time you did. It was meant to happen. You, my friends can find Dianne on Facebook. She writes for Blue Mountains Art Backyard. She has had her poetry published and I am always astounded at what comes out of her mind onto white pages.

Here is the video.

http://youtu.be/N6_583_o54U

Dianne Cogar and Her Poetry


Diane wrote another prayer that I found so emotional. I feel she has so much talent. I can’t help but share her works with you. I believe she read my post about Prayer From My Heart. I didn’t ask, I am just thinking so.

Here is the poem she wrote after I posted mine.

Wish I Could Help You Though…

Wish I could help you through this sorrow
And calm your fears through each new morrow
And show you life beyond this pain
To ease your worries, to keep you sane

When loved ones leave they never go
Their memories stay and ever grow
But what we miss are tender things
Like a long warm hug and what love brings

I’d tell you life will be alright
To comfort you through each long night
But deep down in my concerned heart
There’s nothing sure that I can part

For you must feel the test of time
And believe that God will show a sign
That He is with you night and day
He feels your pain, and hears you pray

And never will He leave your side
For all His children he loves with pride
I only wish I could help you flee
From this broken heart to set you free

But I will leave that up to God
For by your side He’ll always trod
His tender touch will help you heal
Just embrace His trust and know He’s real

~D. Cogarlakeside_cabins-1749