Happy Easter



People come together with their families to celebrate Easter. What better way to celebrate than to spend a few hours going on the journey of Christ’s life. Roma Downey

Yes, I remember. I remember the Easter Egg hunts as a child. Finding colored eggs. Dressing up in the fanciest clothes, sitting in church with the grown-ups. I remember all family getting together, saying grace, and eating so much food that we needed to run it off. I remember baby lambs and baby chicks.

Now that I’m an adult, I have the power of mind to make my own choices. I have the ability to listen and to read about Jesus Christ. I can choose to believe or choose to believe it is all hog wash.

I think it helped me when I read in the Bible that I would have to sell myself to the devil for a slice of bread. I know the fear was planted when I learned that I would burn forever in a fire with no escape.

Yes, I have my memories of Easters past but I am very thankful for the choices I have made as an adult.

Have a Happy Easter my bloggers and friends.

His Sacrifice For Me


His Sacrifice For Me

Easter is something I could let pass me by this year; if it were not for Jesus Christ. The decorations, candy, the ideas that go along with kids is pretty much at ground zero in my home.

I think of Al even more as I walk through the store. It reminds me of last year when Al was still at the nursing home. I had visited him and brought with me Easter cookies, a case of diet coke, and lots of candy.

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His Sacrifice For Me


Easter is something I could let pass me by this year; if it were not for Jesus Christ. The decorations, candy, the ideas that go along with kids is pretty much at ground zero in my home.

I think of Al even more as I walk through the store. It reminds me of last year when Al was still at the nursing home. I had visited him and brought with me Easter cookies, a case of diet coke, and lots of candy.

At the time I knew  I was foolish buying him all that unhealthy stuff, but this year I smile big as I am so thankful I did what I did. The good thing is Al is there now. It is so amazing to know that he doesn’t have to go to the movies to watch Easter themes. He is right there, walking beside Jesus. Oh how lucky he is.

For the umpteenth time I am repeating myself. I love you Buddy and I miss you so much. You enjoy your meal together with the highest of family and I will pretend that Easter for kids is magnificent.

My son and his family will be here tomorrow. We are having what I call a laid-back lunch. Sloppy Jos, chips and salads. I just don’t have the oomph to make that big five-course meal this year. My two grandchildren will hunt for all the hidden, colorful eggs and I shall smile, knowing I am making wonderful memories with them.

You all have a blessed Easter. Make great memories and do something you may not normally think of this year. Remember when I talked earlier about the diet coke and Easter candy for a grown man? Well, I am glad I did that out of the normal thing.

Happy Easter my friends and God bless each of you on this magnificent day.

 

Daily Prompt; Bittersweet Memories


http://dailypost.wordpress.com, DP, Daily Prompt

You receive a gift that is bittersweet and makes you nostalgic. What is it?

Photographers, show us GIFT.

Birthday gifts, Anniversary gifts, Christmas gifts. Even Easter gifts, Wedding gifts, Marriage gifts. All of these take money.

But I received two gifts that cost nothing. One gift I had to wait for the finale for four days. Together the two gifts brought nothing but  joy to my life. Something besides pain to look at. A longing was fulfilled. Smiles replaced tears.

Here are the two gifts I received this week.

The three stage photos are of my bush as I watched it begin to bloom until completed.

The last photo is my new companion. He doesn’t yell at me or abuse me. He loves attention. He is a mature cat. Very heavy, 22-25 pounds. I received him as a gift today, and already my day has become brighter. His name is Rhino.

Rhino

start of flowerssecond stage flowersthird stage flowers

Life Sucks


"Kellogg" brand "candle stick&q...

I have sat down here two days in a row to write and can not. I am brain-dead I think, too much drama going on.

Al is having worse tremors than before. If he isn’t asleep the tremors are at full force. He wants to come home, and I can’t make it happen any quicker. Each day I wait for that phone to ring for the appointment to be made. This is the last appointment before he comes home and the phone remains silent.

I had a phone call last evening after business hours. It was from some collection agency wanting to speak to my brother. I explained that I was his guardian and he couldn’t speak for himself.

http://www.youcaring.com/medical-fundraiser/too-much-pain-and-too-little-money/55964

They said they wouldn’t talk without the legal papers showing who I was. I said I would fax them, but then she told me it would go to another office and would be looked at this morning. I explained to her about the Hipaa laws and that I didn’t want just any eyes seeing private things.

She told me to fax it anyways but I refused. This morning I called this business and they had me on hold for quite some time. When they finally came to the phone they didn’t show any collections for him. They told me to call the hospital and doctor’s office.

I did this and still nothing. I know when I got off the phone last night it only took that one phone call to stress me to the max. I couldn’t do anything until this morning. I started fretting about what could be wrong. I always pay his bills, so what was up?

As I became more agitated I sat here at the computer and cried for no reason. I asked God, God can I put this in the worry basket of yours? I just can’t deal with anymore. I am tired Lord, oh so tired.

I don’t know if God took care of this or if this was a spam call, but there is no evidence of owed bills today.

I rearranged my living room and moved furniture into funny areas to make our home as open and wide as possible for Al’s wheelchair. My family is having issues that I can only be a good listener and a devoted Mom but I can’t fix anything.

I am just overwhelmed I think. The straw that broke the camel’s back was I do not usually go out after supper unless it is about Al or I am a tag-along with my son. I made special arrangements to deliver one of the pieces I sold from my antique site and the person was a no-show.

The gas was wasted and so was my mind and time. I came home and wrote an amendment  that from now on they have to pick-up. If they don’t want to show or have the guts to say they changed their mind, at least it isn’t my gas and time being wasted.

Wow, I sound like a harsh mean old woman. I am not really. I just get sick of crap, as Al would say. He says I am so sick of this crap. Parkinson’s doesn’t care if it ruins me. It doesn’t care if I spill my food all over me and the floor. Darn old Parkinson‘s.

I have to agree with you Buddy, some days life sucks.

Chapter 1, Parkinson’s Disease Journey


English: An IMAX theatre located in the Tennes...

English: An IMAX theatre located in the Tennessee Aquarium at Chattanooga.

You notice something. You can’t quite put your finger on it but you definitely feel it in your gut. Sitting together at the kitchen table you notice a slight movement of his head. The fingers tremble slightly.

Thoughts enter your head. Is he becoming sick? Should I make a doctor’s appointment? It disappears from your view and in your mind. Life goes as planned. I help him pick out his clothes. He gets dressed and I make sure he has brushed his teeth. All is complete and I run him down to the Day Program.

This isn’t any normal day program. This is a place for adults with disabilities to hang out. Al, my brother, has the chance to feel independence. He can hang out with his buddies. He meets new friends.

He learns to play pool and how to get along with others. With him basically being with me all the time I feel it is very good for him to have friends of his own. He learns that he can get free lunches if he earns them. He sweeps the floor after lunch  or maybe he will set the table for the noon meal.

Al loves to hoard his money. His idea of money is to keep what he can and spend it on himself. Spending it on others is not in his plan. I have worked with him for years about gift giving and he did give in to my wishes but not with smiles.

Al experienced so much at his Day Program. He was able to go see a movie at the IMAX Theatre. He was able to go to Tampa and see ballgames. He went to zoos and the planetarium. There was usually a specific activity geared for learning and enjoyment each week.

The city that we lived in was so big. There were many businesses that donated tickets. The main one was the Symphonies. Al was lucky to get to hear some great music during these years.

Every afternoon when I picked him up he chattered non stop about what he did that day. I would give anything to  hear that chatter today. To see the sparkle in his eyes. To see the smiles spreading from cheek to cheek.

Al and I usually visited a flea market on Saturdays. He would beam from ear to ear if he found a coca cola item for sale. Al didn’t care if he had several of the same things at home. His mental challenges only allowed him to understand that here was something for sale with the words coke on it.

I tried to teach him about running out of room and not buying the same thing over and over. We made some progress but even today now that he has ventured into the classic car collections, he still has the same desires but we try to work through them.

We always made a point to go out to eat on Sundays. We usually went for supper for his convenience. Al is very structured in his routine. I could count on a bad day if I tried to change things around. He had to have a nap each day. So on Sundays it was routine to get up and go to church. Go home and get something light for lunch. He would watch his TV programs until 2:30 pm and then it was his nap time.

He would sleep until 5pm and then he was up and ready to go to supper. I was always amazed at how he had an internal alarm clock. He knew when it was time to rise in the mornings or from naps with his own built-in clock.

He loved to go to a restaurant called Dutch Heritage. You have to understand one thing about Al. I started caring for him when he was the age of 51 years old. Because he had disabilities and mental challenges his whole life he wasn’t along so many times when the family went out to eat.

It wasn’t, I hope, that Mom and Dad didn’t want him along. I believe that Al just liked time by himself. He had some on going  issues with his Dad and I think he enjoyed the freedom of making his own decisions when he was alone.

So the Dutch Heritage was a huge buffet type restaurant. At first when we arrived there I got up from my seat to start selecting my food and Al sat there. I asked, “What are you doing bud? Aren’t you coming?”

He replied, “I don’t know what to do. I am scared.”  He started to cry and then it dawned on me he had never been to a buffet before. I sat back down and taught him all about buffet style and after our first visit to the place I never had to teach him again when we returned.

He took so much pride in choosing his own foods. I sit here and smile as I think back to how he would fill his plate. It didn’t matter how many times we visited, he ate in the same order. His food was arranged the same each time. He would get ham, macaroni and cheese, cole slaw and mashed potatoes and one big roll.

He only went up to fill his plate once. I think he always thought that if he went back twice he or I would have to pay a second time. After our meals were eaten, the waitress would always come around and ask what dessert we wished for. Once again Al would look me in the eye with his starry eyes and with big pride beaming from his soul, he would make his own choice.

Always the same though out of all the choices. Cherry pie with ice-cream on top. Oh those Sunday memories I have with him. Seeing him learning and enjoying freedom of choice were some of the best times I ever had.

 

Am I On Candid Camera?


Nursing Home staff

Nursing Home staff

Is this a test?

 

Testing, testing, 1-2-3

 

Oh this is not a test?

 

This is real life?

 

You mean professionals

 

Really can be rude and obnoxious?

 

I didn’t know that…….

 

I thought in the Medical Field

 

People took an oath to treat

 

Others as they would

 

Like to be treated

 

To give the utmost respect

 

To have a compassionate heart

 

You mean this doesn’t happen everywhere?

 

I wonder how many others

 

Didn’t know as I did not

 

This is really a joke right?

 

Am I on Candid Camera?

 

Where is the hidden camera?

 

Did I pass? Can I be on the show?

 

Tears are falling from my eyes

 

Can you see them Administrator?

 

You have hurt my feelings

 

You have treated my blood brother

 

As though he were nothing special

 

Don’t you see how badly this hurts?

 

Can you not see my heart bleeding?

 

Spilling red onto your whitey-white shoes

 

Please understand one simple thing

 

I have been with him for 56 years

 

You have been with him 4 months

 

I know him better

 

I know what hurts him

 

What causes him pain

 

Please do me and yourself a favor

 

Go back to the school you came from

 

Go back to where it teaches

 

Etiquette and patient care

 

Take a second look at him

 

He is my brother, I am his sister……….

 

Terry Shepherd

 

04/03/2013

 

Half of Me Stood Still While The Other Half Went Off


English: Certified HIPAA Privacy Expert

English: By Richard Wheeler (Zephyris) 2007.

I just got off the phone with Al‘s facility. I talked to the nurse. Al has been on my mind more than usual and I just felt something was wrong. Of course they never made the attempt to call me and tell me he wasn’t acting himself. He refused to go out of his room. He refused all activities. The only thing he did was going to meals.

She just happened to be the nurse that called Social Services when she had already went through Al’s room. So she and The S.S. went through Al’s room again. She told me he was embarrassed by talking so rudely to staff yesterday.

I stopped her in mid-air and said,”No the reason he is quiet is because he feels threatened once again. You were in his room searching and then you brought someone else in to search again.”

She said,”We needed to find the money.”

“No, you needed to call me first. If you would have made me the priority you would not have had to search because I did it for Al. The money is gone. I knew it, Al knew it.”

“He had several codes he was breaking.”

“Such as?”

“He had weapons. He had a pair of nail clippers. He had small screwdrivers in a coke can.  He had candy on the floor.”

“The screwdrivers were to  use to take backs off and I will take these home tomorrow when I come. The candy is not on the floor, the basket is. If he has to keep the candy on the bed, then he has to get up from the recliner each time he wants a  piece. The nail clippers..”

“We already took those a way from him. If he wants to use them he will need to ask us.”

“Oh, so he can use them with supervision, is that what you are saying?”

“No, he is a diabetic. He needs his nails trimmed professionally.”

“I see, so you are going to keep them and he can use them if he asks for them but then you won’t let him have them because they need to be done professionally. Why wasn’t I called first?”

“We wanted to see if we could find the money first.”

“Bad reason. From now on there will be no searching unless I am present. Period. You say he is quiet. Yes I imagine he is. The only things in life that matter to him are his cars and coca cola. Every time I turn around you are sending something home with me that is his. Of course he is wondering what you are going to take a  way from him next. He isn’t like you and me. He doesn’t have a spouse or kids. He has no job. He can barely walk. He is here instead of having freedom like you and me. All he has is his collections. Your facility has made it very clear that if anything comes up missing you will not replace it, so why do you give a hoot if a car or money or anything comes up gone? Let him have his loved items. If it comes up gone then it is his loss but he enjoyed it up until the missing time.”

“Oh, I see you don’t care if his stuff is stolen.”

“Yes I care but I care more about Al’s feelings and attitude. He is very sick. I am tending to think more about keeping him calm and as content as possible. Those cars and coke things can be replaced. He can not.”

“Oh”

That was our conversation. She ended it with, “I will call the S.S. lady and tell her what you said.”

I wished her a good day and said good-bye.