Daily Prompt; Google and Rescue Operation
What was the last…
Daily Prompt; Google and Rescue Operation
What was the last…
What was the last thing you searched for online? Why were you looking for it?
Photographers, artists, poets: show us SEARCHING.
Wow, this is an easy post. The last thing I searched through Google was Hospice. Makes sense doesn’t it after what happened here this morning.
Hospice is for patients that want to remain at home and who are dying within a short time. I am learning quickly that although Medicare governs Hospice, the group working within each area can be quite different.
You have firms that have loving people who really care about the patient as much as they do themselves. Even in one group, the shower gals, there are wonderful, take their time people who give patients showers. Then there are those others who want their paycheck. They rush into your home at the last-minute, rush the shower, leaving you, the care giver, wondering if they just sprayed water over the patient.
Hospice is a wonderful program. It keeps many patients out of nursing homes and in the comfort of their own bedrooms and beds. Family and friends always feel more comfortable visiting in a home setting, especially one they have visited in many times before. When you think of the cold nursing home room and the ever-changing staff and the lack of personal touch, most of us would prefer to die in our own familiar territory.
I guess what it boils down to is compatibility. Hospice, staff, patient, family and care givers all agreeing on the quality of care.
This is actually what Hospice is. My job is to get the best help for my brother that special heart to heart bonding and caring attitude. This is why I am looking else where. To me, when someone you love is dying, the waters should be calm, the voice low, the joy pure, and the best memories in the making, resulting in peace and tranquility.
The word “hospice” stems from the Latin word “hospitium” meaning guesthouse. It was originally used to describe a place of shelter for weary and sick travelers returning from religious pilgrimages. During the 1960’s, Dr. Cicely Saunders, a British physician began the modern hospice movement by establishing St. Christopher’s Hospice near London. St. Christopher’s organized a team approach to professional caregiving, and was the first program to use modern pain management techniques to compassionately care for the dying. The first hospice in the United States was established in New Haven, Connecticut in 1974.
There are more than 4,100 hospice programs in the U.S., Puerto Rico and Guam. The majority of hospice programs are Medicare-certified. In 2008, over 1.45 million individuals in the United States received hospice care*.
Hospice is not a place but a concept of care. Eighty percent of hospice care is provided in the patient’s home, family member’s home and in nursing homes. Inpatient hospice facilities are sometimes available to assist with caregiving.
Pissed Off Over Bread? You Betcha!
Of all the post I have written over the past year and a half, I doubt if I have ever written a…
You Must Be Curious
I have had so many new visitors lately. Word sure gets around when you are speaking of illness.
I am so grateful for all the support I have received from each of you.
Today just has been pretty bad. Al started during the middle of the night with terrible nightmares, that lasted until 9am this morning, so I have been up a long, long time.
He has had terrible tremors, so much sweating I have had to change his bedding several times.
Forget the house, it looks terrible but today, I don’t care.
He refused food at all until about an hour ago when he ate one small doughnut with great struggle.
Hospice spent an hour here. Medications were once again changed, some taken a way, more added.
He has seen Rhino hanging upside down from the ceiling. A conversation and discussion was taken up with the doctor.
It was related to me that now that we are in the ending stages, hallucinations are going to happen. Not from the medications, but from the brain being so messed up with connection problems.
He has been on his light more today than any other time. Sometimes just to tell me he is done, or he is tired of fighting, that he wants to die. Other times it was because he was seeing things that were not there. He asked me what blue thing was flapping in the air and I finally figured out it was the blue TV screen.
He has slept little, he has been hot, cold, hot and more cold. Sweaty, dripping, swimming, you name it, he has been wet on his entire skin all day.
Rhino the cat is going nuts in his own way. He tries to comfort Al but Al doesn’t get it or sense it.
For those of you who have not been with me very long, I wanted to share what M.S.A. actually is. It is rare, about one in one hundred thousand people get it. Many doctors do not recognize the word.
Please read if you are at all curious. All of the symptoms stated, Al has.
Ever since Al came home last evening something hasn’t been right. Setting aside the fact that I could see he was very weak, I also tribute this to the fact he has been in a bed for five days.
But there is something else and I could not put my finger quite on it. Now that Al has been here all night and today I see a little more issues. Breathing for Al is difficult even when I am not moving him.
I did get him out of bed today. I pushed him to the kitchen table and he ate. He didn’t want me to feed him but it took him an hour to eat, but it’s alright, we weren’t going anywhere today.
The Hospice nurse came today to see Al. She checked him over. Al could not take his deep breaths like he needed to do so she could listen to his lungs. He leaned to the side and didn’t sit up straight. His voice is so soft and he doesn’t articulate his words so understanding him is very difficult.
Today I have seen him breathing deeply. He is struggling and I am giving him medication to help with this. I just checked on him and he is actually stopping breathing and then breathing again. It is not like that special breathing at the end of life, but very similar.
The Hospice Doctor and the nurse, and Hospice House all agreed that it was time for the next step. I have dreaded this for months and now it is here.
He can still go to Day Program if he can function here at home enough to go. I know he wants to go pretty bad tomorrow as they are having a Halloween party. I hope he can go too for his sake.
The other decision that was made is all of his medications minus pain and seizure and BM aides have been put a way now. Writing that sentence about rips me in half. I am not dumb. I know what that means.
I want to write more, but I can’t write now. I just can’t deal with it, sorry.
One of the Hardest Things To Hear
I am not going to make this long. I will just say that Al has not felt good for a few days. In his…
I am not going to make this long. I will just say that Al has not felt good for a few days. In his words, he says he fills funky. He has not eaten well for a few days. Today at his Day Program he blacked out and fell forward.
The Hospice Nurse just left our house. I want to take her simple and polite words and dissect them to death but I have to remain sane. I knew something wasn’t right when she made me leave Al’s room to talk to me.
I can still hear her words exact. ” Has he been talking about dead people? Has he mentioned anything about not being here long or taking a trip? I couldn’t find a pulse but did find a weak one in his feet. He may sleep a lot now. If he doesn’t want to eat or take his medications just give him the pain ones for his labored breathing. He is declining.”
Dearest friends, please pray for me. For at this moment, this very second I just want to throw up.I am not sure if I can do the waiting game, the over-checking on him, the stress and worry, watching his breathing things. I need help.
Al has been in Hospice House