It was a day that started off terrible but ended up calm. I called the facility to see if Al would like to go out for lunch and he jumped at the chance. I went in and picked him up at noon and the nurse told me to be careful, that Al was in a mood.
Evidently he had been in his wheel chair therapy with his favorite therapist. She was having him do some exercises that hurt his muscles. He was letting her know how he felt about it in a nice loud voice.
The therapist found me and said that Al is so close to never being able to walk again, she is determined to keep him walking just a little bit longer. I knew that Al was struggling but I was also wondering why she was pushing him to walk when we all could see he could barely do it.
Then she explained further that she was trying to get him to the point where he could stand and try to put his own self in the wheel chair. In other words transfer himself. Then I understood more of what she was talking about. She told me his time is so close to being up for walking, it just made her sick inside and I understood.
I went in to Al’s room and he was definitely in a roaring mood. He was crying and talking so fast I could barely make out what he was saying. The aides knew I was coming so two of them were cleaning the poo from under his nails.
I couldn’t get him settled down no matter what tone of voice I used. It used to always work but not today. I finally told him I could not take him out in public like that. I had to repeat it two more times and finally it clicked. He began to settle down some and the tears slowed.
It took three of us to stand him up from his recliner. I was thinking I won’t be able to do this much longer. I won’t be able to handle him getting in and out of the car and to where ever we would be going.
This just broke my heart. I talked about everything but the nursing home and by the time we hit our favorite food joint the tears were minimal. He ate very well and even had a piece of pie for dessert.
After we left there I took him to Shoe Carnival and bought him a new pair of awesome Nike’s. They are gray with the new bright flourescent green trim. He was so excited. I was jumping up and down inside to see him back to somewhat of the brother I knew.
Then I took him to Wal-Mart and had the beauty shop cut his hair and trim his brows, ears and mustache. He looked awesome! I think he enjoyed it. I bought him an extension cord for the radio I had purchased the other day. It is small but has a nice bright time on it so he can see it through the middle of the night. He wakes up a lot and he likes to know what time it is. It also has a radio on it so he can pick up more than he can on his coca cola portable radio since it is electric.
I bought him some new socks also. I had purchased some about a month ago and would you believe only one pair was in his drawer. Where in the world do these clothes go? I get sick of buying over and over the same things.
I already told you that he is now using medicated powder for his very sweaty feet because the aides are not putting his regular socks on him. They use slipper socks which make his feet sweat worse. Guess what? When I went in today he had slipper socks on.
I got cocky, I know I did, but I have told them three times now not to put those dang slipper socks on with shoes!!! I made them change them before we left. This is why I had to buy him the new shoes. His feet sweat so bad that it pollinated the interiors of his shoes.
He was exhausted by the time we got back to his room. I plugged in his clock and got it set for the right time and he wanted to lay down. As I was getting ready to leave he looked at me and said, “I’m really trying sis to be good but the pain meds just don’t work good enough. It hurts all the time.”
I told him I understood and cursed the Parkinson’s Disease as I walked out of his room to let him sleep. All the way home I kept asking myself why. Why him why does he have to hurt so bad? How much longer before I can get him out of this place?
I’m getting to the place where I don’t want to be around anyone that is terminally ill. Being with Al is all I can handle. My heart won’t take any more pain from others. I don’t know how in the world I will ever be able to take care of more patients unless I do it through blinders. Do the job, and go home, collect the money and go back…………
- Physical therapy (PT) improves gait speed, strength, and fitness in Parkinson disease (handtutorblog.wordpress.com)
- New Treatments Emerging for Parkinson’s Disease (voanews.com)
- Linkage Connecting Parkinson’s and Visual Problems (dranilj1.wordpress.com)
- Hip fracture in Parkinson’s disease (PD) (handtutorblog.wordpress.com)
- Parkinson’s drug linked to artistic spark (reuters.com)
- Pesticides and Parkinson’s: Further proof of a link uncovered (sciencedaily.com)
- Max Little: A test for Parkinson’s with a phone call (true2mind.wordpress.com)
- Parkinson’s may have caused me to fall, but I am determined and I will finish! (cellcomgreenbaymarathon.wordpress.com)
- Rob Deering: I sometimes worry I’ll develop Parkinson’s like my dad (metro.co.uk)
- Potential Link Revealed Between Parkinson’s And Visual Problems (medicalnewstoday.com)