Hello my dear friends. I have been very busy. I have had too many days without help so it is slowing me and my energy down. I am more tired. Al is continuing to get worse. His fever is trying to stay high even through Tylenol.
Last night he scared the crap out of me. I tried to turn him over on his side. What I saw is what scared me. His half side of his face was white dots. I mean dots all over, every pore was filled. His ear was covered in white dots and down inside his ear.
He was able to talk just enough to let me know his throat hurt and his other ear was beginning to hurt. I looked inside his mouth and his tongue was a full dose of white polka dots.
It was late evening but I called Hospice anyways. Not wanting to come out, they were not sure what it was, but they did advise me of something to give him until they arrived this morning.
So all night I was up with Al fighting his fever and trying to keep him comfortable. He finally drifted off to sleep around 3am, then so did I, but was woken up at 7 by a text. I got up, realizing that my day was not going to be a good one to start and also I knew the shower gal would be here in one hour.
I decided to take a shower to help wake up. I am too old to go for a whole day with only four hours. The nurse did come this morning and I learned that Al is really fighting a fever now because the MSA is just running rampant inside Al. It is so bad that it is seeping out his pores.
What I was seeing last night was the illness itself. I felt at that moment I was going to be ill, and I could only imagine how my poor brother must be suffering. My day drug by and it went pretty slow. I never did take a nap but I hope to go to bed earlier tonight.
This evening Al was watching a movie of Laurel and Hardy. I decided to take a couple of photos of Rhino, our cat and I did one sketch tonight. I thought I would share with you also what I did.
Please continue to pray for Al and me. I had a panic attack today but thanks to a dear friend online I was able to keep it at bay. I think I am just plain exhausted and I crave sleep. Hugs to you all and thanks for being patient with me for my lack of writing quite as often.
Continued prayers for you both sweety! Everyone understands that you can not write all the time while being a sister a care provider a nurse all in one plus try and care for yourself too. I am sorry about the panic attacks I have friends who have them and my son deals with anxiety not the same but close. Glad to hear a friend could help you with that as I know it is a scary thing to go through. Give AL kisses from us all and to you many hugs and kisses too! We will be here for you when you need us and in the meantime rest as much as you can and I know that is as well hard to come by but dear friend please try when you can. We all love you and I pray sleep comes for you and peace comes for Al very soon
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Thank you so very much. Your precious comment means the world to me my friend. God bless you for being you
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*hugs* I am so sorry. It is not fair for him to suffer so much.
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I pray daily that God will rescue him from this terrible disease
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Continuing to pray for you and Al. Stay strong my friend; the Lord is by your side. He knows what you and Al are feeling. Lean on him. Praying that you get a restful nights sleep and Al’s fevers go away. MSA is a monster for sure. Praying for Al’s release from this disease and what it has done to him.
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I am still fighting Al’s fever. The medication we use for fevers isn’t doing so good anymore. Hospice told me we may fight the fever to the end. I love that you pray for Al and me Dayna. you are a wonderful soul and I think you are wonderful!
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Wow!!! Bless your heart…you are mentally and physically exhausted. Praying for a peaceful rest for you and for Al. This MSA sucks!! Not looking forward to any of this. My mom has it. It’s already breaking my heart. Thank You and Al for sharing your journey with us. You have my continued prayers…I Question it all…but I could not image doing this without God and support from friends and family. I’m sending you a Warm Loving Hug!! Praying that God will wrap his arms around you and Al until you feel safe and comfort. ❤️
Love Tamma
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imagine….
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Bless you Tamma, I love you for what you represent in life. A good person, a big heart, full of compassion. I am honored to call you my friend
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Praying for Al to go to Heaven today…. Hugs and Love to all of you!! ❤
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Sending hugs and warm thoughts.
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Hi Tiny, I really appreciate your comment, thank you so much
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I pray for strength for you Terry and for Al, just respite from pain and peace…. Diane
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I treasure your prayers for Al and me. God bless you Diane
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if only i could engulf you in a heartfelt hug. at this point you know that al will not be with you much longer so my hope for you both is peace of heart. love and hugs to you my friend
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Is it wrong to pray daily for God to take Al home and release him from this illness? I know I will miss him more than I can even say, but I can’t stand to watch him continue to suffer
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i can’t imagine wanting your brother to have relief from suffering would be wrong. you deserve compassion as well as your brother. i will be thinking of you and al. sending love and hugs
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Thank you
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Sending prayers and good vibes. Hugs
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Hi Granny. I feel comfort in always knowing you are with me through this, thank you
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We are all behind you!! Can you feel the love?? Sending with all my might!!
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I do feel the love. You better not go anywhere, lol, I have come to depend on your friendship. hugs!!!
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I’m right here!! And will be for a long time, dear friend!!!
Hugs, tight hugs!! 🙂
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Please email me whenever you want to for a chat – love you!
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I will, most definitely tonight
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Sending you love and prayers, you both need a release and I hope God will hear us!
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Good morning Ute. I believe also we both need a release in this new day. I pray for peace and lots of love
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I will continue praying dear Terry. Sending hugs and love.
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Good morning Michelle. I so appreciate your continued prayers. I pray there is a God and he is listening. All of my life I have believed in God and I am counting on him now more than ever
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I echo all the sentiments written above. Prayers and peace.
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Good morning Mimi. Thank you so very much for being the wonderful you, always with me, prayers I can count on. Bless you and hugs
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Hang in there Terry. We are here for you.
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Good morning Al. I am doing my darndest to get through this ugly thing. Hopefully soon it will be over. Hugs
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Good morning. I’ll keep you in my thoughts Terry
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thanks my good friend
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You have no need to apologize. We’re all understanding and praying for you.
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Good morning my friend. Thank you for being the kind person you are
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You haven’t left my heart and mind since I read your post this morning. I think you’ll be with me all day 🙂
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You help keep me strong my friend
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Continued hugs for you and Al. God bless your caring heart and prayers for peace for Al. You are always in my thoughts – we all love you and Al.
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Good morning Patty. I appreciate your comment very much and hope your day will be filled with peace and happiness
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Hate this!…for you and Al!… way too much…time for a change has to be soon!…take care!
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I pray it will be very soon also. We have had enough. Good morning Marilyn
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big big hugs my dear friend
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I will take that big hug my friend, love and hugs
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(((((HUGS))))) for both you Terry and Al. No one should have to suffer like this for so long. Stay strong 🙂
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I could not agree with you more Caren. I pray that God releases Al from this wicked illness. Thank you for the hug, hugs back
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HUGS Terry……
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Hi Carol, hugs
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The way you are holding up is amazing! Im so sad for you, and yet so impressed, and so wishing you were never alone now without help and comfort for these final days and hours.
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You understand so well Mona. I appreciate your big heart and understanding compassion
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I continue to pray for you both Terry. God really is with you. Ask him to let you know that.
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Alright, I will do this Cathy, thank you
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Sending you and Al a healing hug in the mighty name of Jesus, the fever be removed, I claim victory for both of you. Physicians heal thyself, you speak positive, undoubted life to both of your bodies. Cyber hug. As they say when you have kids, sleep when the baby sleeps. Get some rest,God rested on the 7th day, and has all power.
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Thank you so very much my friend. I treasure your comment
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Don’t think I didn’t read your post, life also means life with The Lord. Its better to be absent in the body, but with the heavenly King, where there is no more sickness, be blessed.
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Thank you, you are absolutely right
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You have been in my prayers regularly although I have made no comments. I have a quiet moment right now. We are between doctor appointments and I can stop and take a moment to comment. My hubby went in for a double hernia surgery that had a series of various clearances from doctors prior (heart, lung, urology, etc.) which he finally had a few days prior to Christmas. One month later they removed some cells from his mouth and lip that were deemed as precancer. When we went back to have the stitches removed, our lives were changed. We were informed that he had stage 3 cancer and that he would be tested also for prostate and pancreatic cancer. That was the longest doctor’s visit I have ever sat through. The waiting between doctor visits is the roughest. We now have to wait till March 4th for the next visit for a doctor that is 1 1/2 hours away. My absence my seem like I have not been here but I read and pray for you regularly and do think about you often…prayers and hugs sent….
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I am so, so sorry Tammy. My heart just burst with pain when I read your comment. What news you received and yet you still commented on my blog. I will pray for you and your husband. God bless you both with much healing
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I just wanted to let you know that others do care and are praying for you also. Thank you for your prayers also. Prayers do change things although we are now praying that it be God’s will be done.
Thank you again.
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You are so welcome my friend
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🙂 Keep smiling my friend
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