
Just a thought

yield: 30 COOKIES
prep time: 10 MINUTES
cook time: 20-25 MINUTES
total time: 30 MINUTES
If only we had a brain! Remember that from the Wizard of Oz? Well, who knew the brain could be such a problem. It certainly is when you are faced with Neurological Diseases. Doctors can’t fix what they can’t investigate.
You need to have expired here on earth in order to study the brain. This was the case for my brother and so many others dealing with this issue. I went to be fitted today at an Orthopedic specialist for my new shoe and brace. The hope was, that the curling of my toes may stop curling any further.
After so many tries of various gadgets the sad news came that my brother used to hear. We just can’t help you. Perhaps a neurological therapist.
I have not heard of this but I am willing to look one up and try if it is not too far a way. The doctor said today that there is a possibility of my toes curling so far under that I would walk on the underneath of my toes. Ouch! Just thinking and visualizing this made me cringe.
The good news is I am no worse off for the moment and yet no better. The hope that those with this illness carry for a cure or some gadget to make life a little easier to manage is our dream.
I am not crushed. I pushed and studied and joined groups to learn about Multiple System Atrophy and I will fight just as hard for myself as I did for him and for others.
My son is going to come over tomorrow and try to tighten up the scooter I have. It is wobbly in the steering and the seat seems loose. Of course it isn’t new. It is the one I bought my brother. If it doesn’t help, I may have to see if I can get a more sturdy one.
This doesn’t mean I will give up walking, oh no way! I do have bad days when standing is very difficult, and on those days, I would ride the scooter. I wonder if there are any programs that help to purchase or donate one? I don’t know. I know Medicare helps but there is a 20 percent part I would have to pay and I remember from my brother, that is pretty expensive just on that part.
Guess it is time to start praying for some more help. Things will work out. I know they will. I know my condition won’t get better and I accept this. God won’t give me anything I can’t handle and he will give me the strength to get through what he gives me.
God made us each unique. There is no one else out there like me, or at least I hope not, because I still haven’t figured out who I am and what I am supposed to do here until he takes me home again.
Then why is it that we make such a lime light when something bad happens to us? We talk about it to everyone who will listen. We think about it and ask ourselves why me. We have our own crying parties and then we straighten ourselves back up again; ready to conquer all.
For me, I know my part of Parkinson’s is very common. I don’t know the statistics; but most people say something like, Oh, you have Parkinson’s. I know so and so who’s father or mother had that too.
When the news came out yesterday that Alan Alda now has confirmed his diagnosis of Parkinson’s; suddenly I was shocked.
Why was I shocked? Beats me. I perhaps thought I was the only one in the world with it? Alan Alda said he has had a good life and that this disease will never define him.
Wow, what an attitude. He is a big, super star and he got Parkinson’s, just like I did. My friends, I don’t know the reasons we get this or that interruption in our lives. I know that God knows and this was in his plan for me.
I will continue to talk to people about my illness because I hope that someone has a tip of how I can live a better day with my symptoms. I will continue to ask for prayers from my Parkinson’s groups.
I will continue to live life as normal as I did before. I probably will still have my very own pity parties because I am human and have weak moments, just like you and Alan Alda.
We are unique, as I stated earlier, but when a bump comes in our path and we stumble over it, we become less unique and find common ground with others seeking comfort and cures.
Writing this makes me sit up a little straighter in my chair. It expands my lungs a little deeper as I take a stronger breath, ready to tackle what is laid in my path.