This is starting the second day now with a new change, that isn’t good in our home. Al has declined eating. Not entirely, but quite a bit. Yesterday he had one item for breakfast, an Ensure for lunch, and he did eat a pretty good supper.
This morning I was happy. He asked for pancakes. He also wanted his usual craving for sugar. He never used to eat sweets but he does now. He wanted a cherry turnover. I happily fixed him the pancakes.
He ate the cherry turnover and one bite of pancakes. Well, I tried. I tried a bite to see if they were edible. Yes, they were it was just Al.
He woke up with telling me of bad dreams he has had the past few days. This morning his bad dream was that he found out he had cancer. I laughed it off telling him that this wasn’t a bad dream, it was a silly dream as we both knew he didn’t have any cancers.
Sometimes I wonder in the back of my mind if he could have prostate cancer with all the dark on his bed pads. He also told me that the other dream he had was that I got sick and I was in a wheelchair just like him.
Now he had hit a tender spot with me. Although I told him he could see with his own eyes that I was walking; it reminds me of my constant bartering with God. I always pray, Lord, you can take me home when ever you wish. You can give me any illness you want; but wait until Al takes his last breath.
I took a deep breath and changed his brief and changed the subject. His tremors were a mess this morning. I didn’t know it for a while but Al has M.S.A.-P. This means that Al has Multiple System Atrophy with Parkinson’s Disease being prominent. So this is why we see so many tremors with him.
Al told me through tears this morning after breakfast, ” I’m sorry Terry. I am sorry I can’t eat. I feel funny.”
” How do you feel funny bud?”
” I can’t describe it Terry. I just feel funny.”
He wanted to go back to bed. He had his shower and a clean brief and was put back in bed. At least he is not thinking when he is asleep. His body gets a break from the terrible tremors when he is sleeping.
My chin is up, my prayers are strong, but my hope is diminishing and my heart is breaking as I have to walk this journey with Al, seeing him fade a way from me and this world. I think Al knows it too. I think this is what he is talking about when he refers to he can’t explain it.
The Person I Have Always Known
I remember him lining up cars
On the carpet, being very quiet
Living in a world all his own.
I remember his first scooter
And how proud he was
He smiled as he rode by me.
I remember his first car
And the excitement in his eyes
Independence he had never experienced
Was now his forever more.
I remember his baring his soul
When he could no longer walk
The tears in his eyes
Questions with no answers.
As God prepares to take him home
His memories I will hold dear in my heart
Nothing on the inside will ever change
He will always be my brother.
Written by,
Terry Shepherd
09/15/2013
I feel you ….. strength!! Bright light & energy sent your way!! 😦
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thank you Dr. Rex. I feel edgy today and restless
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Breathe in and out …… several times. Don’t forget to breathe. Make it a point to do it consciously.
Hugs!!
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ok all of a sudden I am freezing
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Lay down, quiet room, darkened if possible. Quiet meditating music ….. breathe slowly, in and out and concentrate on your breathing.
Breathe in “blue” and breath out “red” …… do it as long as you can!!
Breathe ……
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ok
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it helped, I rested, then I listened with Al to Dr. Charles Stanley. Al did eat 25% for me at supper. I feel better, thank you for your help
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Keep praying, the best thing to do. I do too for you and Al.
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god bless you Ute
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You have my prayers…may God bless you!!
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thank you Kathleen
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You and Al are being held close by so many…with prayers and heart-felt thoughts.
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thank you Mimi
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You and Al are in my thoughts Terry.
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Oh Al, I feel sick inside. I don’t know why, nothing has happened
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Hugs
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Hi Tersia, so many questions I would like to ask, but,,,,,,don’t
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Terry, when I feel bad, sick inside and don’t know why, I turn on Christian music and sing. It usually makes me feel better. I am praying for you.
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thanks Sparrow. I turned on Escape music and rested when Al slept. Then I listened to Charles Stanley and that helped
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Fear not,
2 For verily I say unto you, blessed is he that keepeth my commandments, whether in life or in death; and he that is faithful in tribulation, the reward of the same is greater in the kingdom of heaven.
3 Ye cannot behold with your natural eyes, for the present time, the design of your God concerning those things which shall come hereafter, and the glory which shall follow after much tribulation.
4 For after much tribulation come the blessings. Wherefore the day cometh that ye shall be crowned with much glory; the hour is not yet, but is nigh at hand.
I’M PRAYING FOR YOU BOTH DEAR.
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thank you dear friend. Lots of questions from Al today. Sitting with him. He did eat 25% for supper. We listened to Charles Stanley during our meal, and during that hour Al’s tremors were silent. God is amazing
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How tender are your memories of young Al. Thanks for sharing them. Blessings to both of you as you share his final journey.
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Good evening Mona. Although a very rough day full of questions we are still here. He is resting but did eat 25% for me at supper
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The circle of life is nearing it’s completion, I pray the serene and peaceful transistion for Al, for you strength in knowing that you went above and beyond in your care and love for your dear brother. We are all here for you offering you both an abundance of love, peace and faith. Love you both.
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I don’t know how much rougher it would be if I didn’t have your support. Al ate a little bit for me at supper. We listened to Charles Stanley’s sermon on Heaven during supper. It brought some answers and inner peace
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You are such a beautiful person!
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oh thank you my friend
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Yes, he is your loving brother
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yes he sure is, thanks Yoshiko. Hope you are doing well
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Welcome, Terry. I’m not doing so well
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Are you sick my friend?
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